Glad I've stayed positive!

[Beryl71]

Just to say ladies, that after two years on letrozole and ibrance, and feeling so much better, I've been on my first foreign holiday since early 2020. I've had five vaccines and wear a high grade mask and look after myself. I went with my partner to the Spanish Pyrenees for a walking holiday. I was a bit slow on some of the uphill bits but managed fine. We're now making plans to spend our time more permanently together. So new life, new love, new experiences, all after MBC! I bless every day. Hope this gives hope to anyone newly diagnosed. Forget it's incurable, lots of things are but it doesn't mean it's the end yet. Xxx

[AutumnLove]

Beautiful!❤

[Kiss_my_grits]

Beautiful and good for you! 💕

[Hidden]

What an uplifting post (and beautiful pic!) to wake up to! :). Congratulations! I'm so happy for you!

[Kruza]

Good for you, glad you enjoyed your holiday and are doing well. Beautiful scenery.

[Best521]

Luv It🥰. It must have been so awesome to be traveling. Can’t wait to hit the road again. Just renewed my passport. 6 months on Letrozole and Ibrance. Fingers crossed they keep working. There are a lot of places to see.

[Beryl71 in reply to Best521]

Good luck, enjoy!

[Thatflowerlady]

I am so happy for you !

[Teddielottie]

Delighted for you ! Keep keeping positive! x ⛰

[Trissh]

Such an awesome post to read today. Your positive state of mind will always serve you well!

[BluHydrangea]

Beryl- thanks for the lively photo and the positive post. I’m trying to regain my positivity after progression and med changes. I’m happy that your new life is joyful and exciting!!! Good for you!

[Red1246 in reply to BluHydrangea]

Sorry for the changes. I recently went through a metastasis scare with scans so I know how you feel. Wishing you all the best!

[NPmary]

Happy for you.

[Hm50]

So pleased to hear this and lovely picture

[Tantalon7211]

A lovely read- and so happy for you I’ve just been diagnosed with pelvis mets and finished radiation and supposed to start on Ibrance - very scared of side effects -

[Beryl71 in reply to Tantalon7211]

I've had no side effects from ibrance, so hope you get on well with it. X

[Red1246 in reply to Tantalon7211]

Please try not to be scared. I’ve not heard of many with bad side effects from Ibrance. I’ve been on it for 2+ years and my symptoms are only low white blood cells. Just means I take a longer break before starting a new cycle of Ibrance. Wishing you well!!!

[Tantalon7211 in reply to Red1246]

Thanks for your reply- I’ve just heard of so many severe side effects- she is starting me on .75 so hopefully will help/ how long have you been on these meds- probably takes a little time for our bodies to adjust as well

[Red1246 in reply to Tantalon7211]

I started on 125 mg in September 2019 but it made my white blood cells too low so I went down to 100mg. Really no issues. Hoping you’ll be the same. 🙏🏻😊

[Beryl71 in reply to Red1246]

Hope both of you continue well. I've managed to stay on 125, I only had a break when I had an infection and was on strong antibiotics.

[AuntC in reply to Tantalon7211]

I'm on 75mg. also. I started with 125mg. but it lowered my WBC too much. I've been stable now for almost 3 years. No side effects at all. I'm 75, I thank God every day and I plan on being around for a long time.Carolyn (AuntC)

[Tantalon7211 in reply to AuntC]

Thanks so much for your reply it really made me feel more comfortable starting it- starting at .75- I was scared as I had bad side effects from the inhibitor pills- fatigue and loss of appetite but it seems to getting better, so will start on the Ibrance - so glad you’ve had success for 3 years and I’ve heard it helps women for many years - great News and continued health

[Discocat in reply to Tantalon7211]

I’m also responding well to Ibrance. I’m on full dose for the last 9 months. No real side effects and all stable with some reduction also.Even hair thinning has stopped and growth is now normal with no additional loss.

Good luck to you.

Love Zoe xx

[WhippetX2 in reply to Tantalon7211]

Don't be scared. I've been on Ibrance for a little over a year and have tolerated it very well except for low white blood cell counts. But as far as day-to-day activity I haven't slowed down.

[8576]

Thanks for posting this nice picture and for the positive review of your journey. Encouragement for sure for those newly diagnosed.

Cheers, June S.

[Debbigbang]

Congratulations!! So happy you found your mate 😁. Goes to show nobody knows what is around the corner. Rather be positive than negative 🥰

Deb ❤🙏

[viennagirl]

It is wonderful that you are doing so well and congrats on finding a good person to share your life with. I have also been doing well on Ibrance and Letrozole but recently have been having mild headaches. It is scaring me. But I have scans coming up in the next month and so will find out more about what is happening. It might just be my reaction to all the pollen we have had this year. The headaches are mild - thank god. I also try to get out and for a walk every day and my legs are feeling stronger. It is important because my husband wants to go somewhere warm this coming winter and I hope to be able to do some gentle hiking. It is good to learn that others with mbc are also doing well. My last scan showed no progression and the one before that showed NED. So I hope the headaches are not something worrisome. All the best in your new relationship. Thank you for sharing. Hugs Marlene

[Beryl71 in reply to viennagirl]

I think any new pains worry us all. Take care. X

[Liessie in reply to viennagirl]

Hi , I too have been on Ibrance and Letrozole for nearly 2 years, I am also having headaches since the polken has been really high , I was the same last year, Xx

[viennagirl in reply to Liessie]

Thank you Liessie for responding to my concerns. I feel comforted by your words because I was starting to think I have something more sinister going on. I will have my scans soon and so now I will stay hopeful and happy. Hugs Marlene

[love2golfwell]

Beautiful picture and so very happy for you! I hope you and your partner will share many years, lots of travel and wonderful memories together. Best wishes.

[life8888]

Beautiful!!! Fellow MBCers being active make me so happy!

[Gingerann1]

So glad you are doing well and enjoying life!

[bracelets1]

What a beautiful view! So happy for you and I love your positivity- Blessings!

[Shar313]

Congratulations!!! Thank you for such an uplifting post. Thinking positive has such a profound effect on our health and life. 🥰❤️🙏🏻

[rrums]

I love this post! Thank you!

[Totheriver]

So happy for you🙂

[Eyebelieve]

I am truly happy for you Beryl71 and appreciate you sharing. I have been struggling lately, not with the disease itself, but with the reality of it. I am reluctant to say that as I know so many of our sisters are struggling with the disease itself. I have been blesses to be on Ibrance and exemestane now for over 2 1/2 years with no progression. I need to focus in that moment, not when will it stop working . You have given me hope and encouragement to live the moment and be happy. Thank you and.

[valentinecalico]

thank you for posting your beautiful story and picture. Gives me hope for my own situation as I sometimes feel that I am in a holding pattern just waiting for my next scan etc, rather than enjoying life. xo

[Beryl71 in reply to valentinecalico]

I was like that for a while, especially during lockdown, but I've broken out now and feel more my old self! X

[Red1246]

Beautiful area and good for you, Beryl! I’m75 and on samr meds as you since 9/19. Attitude is so importabt, thought hard to maintain at times. Agree: it may be incurable but so is love. Enjoy every moment of your exciting new life. XX

[WhippetX2]

Beautifully said. You can't imagine how much your post meant to me. You are out and about enjoying every minute and good for you. May you have many more adventures.

[caw517]

Enjoy every moment just as you are. Hoping that you will have a long time ion ibrance . I was on it for nearly 6 years. It was paired with exemestane , then later letrozole and finally faslodex. It was a good run but it no longer is working. I’ve had additional progression and was started on a new drug regiment. I have to say I never thought I’d miss ibrance … but I do. I hope you get many more years on it! Take gentle care!

[Beryl71 in reply to caw517]

You take care. X

[Kcap430]

Love everything about this post! On those days when my anxiety tries to rear it’s head I remind myself that TODAY belongs to me. I may not have control of some things but I certainly have control of how I live💕

[PJBinMI]

Gorgeous photo! And it's great news that you were able to hike uphill! And to be moving forward with your partner! Enjoy life! I'm a mountain lover. Lived in the coastal range and the Rocky Mts as a child and miss that scenery. I also love to travel...went on a cruise, a great kind of travel for those of us with health concerns--a bed always there for naps and a doctor on board as well. Plus great food and sights!

[Hidden]

So glad you got out there and managed a walking holiday. Such an inspiration.Clare

[Shafight]

Wonderful. I e been afraid to leave this country. B you are doing so well. Inspiration!

[Hotlantaphatz]

Thank you thank you thank you for sharing!

[Jaynikan]

Good for you .it is always nice to see positivity.I also believe that every day is bonus given to us by God and we should spend it by doing things that makes us happy my motto is _ "be positive and happy"

[AuntC in reply to Jaynikan]

AMEN❣

[kokopelli2017]

such an uplifting and happy post!. I have been following your new romance with interest. my ex-husband divorced me during my initial primary BC treatment in 2013. I dated a nice man back in 2019 after I had progressed to mbc. I was really falling for this guy and we had a lot of fun together....but he opted out when he realized I had some 'limitations'.your story/romance so refreshing and has restored my faith in men😉.

thanks for sharing your beautiful story❤️. I am very happy for you both. XO

[ANKN25]

All the very best to you!