Mets in spine

[Rego-park]

Anyone have this please share ?

[wendle3007]

Hello. Following BC diagnosis i was given bone scan and they said I had mets in T12 and pelvis. When I started my BC chemo I also started on Denosumab injections and calcium and vit D supplements to make bones more resistant. Towards end of last year I told oncologist about tingling in my thigh so I had MRI done. As well as showing the T12 met to be bigger than they thought, it also showed small mets in 3 other vertebrae. I had radiotherapy on the T12 met - have no idea how they measure if it's successful as I've only had CT scans since. I've tried to push my concerns but they keep saying CT is sufficient

[EvaL]

Hi, I was diagnosed in December of 2015, I had 3 lumps in my left breast, 3 spots on my liver, several spots on my rib cage and spots on every vertebrae in my spine as well as my pelvic bone. I had the Red devil chemotherapy and then I had chemo treatment for 6 months. I right now after a couple changes am on a maintenance treatment of Perjeta and Herceptin shot (a new phesgo not sure of the spelling) every 3 weeks. I take Letrozole daily, it has done a number on my joints, my knees hurt when I use them. I take gabapentin due to the neuropathy.

I am also one of the patients that had a adverse reaction to the Xgeva. Long sorry short I had a bone grow out of the roof of my mouth and lost 5 teeth..

I don’t know if this helps, I know getting on here and kind of visiting with people going through what I have does help. I am fortunate I get around pretty good. I hurt and do have strong medicine to help with the pain, I couldn’t survive with out my pain meds. My friends try to understand but don’t realize the pain from neuropathy and tire quicker but look good.

Keep fighting,

Eva

[Rego-park in reply to EvaL]

Wow your amazing my sister has brain and spine now she’s in the hospital 😂