Some of you may be interested in this topic. It seems that this group takes concern for the comfort and education of MBC patients very seriously indeed. Here are a couple of quotes:
"Following a thorough assessment and confirmation of MBC, the potential treatment goals of care should be discussed. Patients should be told that MBC is incurable but treatable, and that some patients can live with MBC for extended periods of time (many years in some circumstances). This conversation should be conducted in the accessible language, respecting patient privacy and cultural differences, and whenever possible, written information should be provided."
"Every ABC patient must have access to optimal cancer treatment and supportive care according to the highest standards of patient-centred care, as defined by: - Open communication between patients and their cancer care teams as a primary goal.
- Educating patients about treatment options and supportive care, through development and dissemination of evidence-based information in a clear, culturally appropriate form.
- Encouraging patients to be proactive in their care and to share decision making with their healthcare providers.
- Empowering patients to develop the capability of improving their own QoL within their cancer experience.
- Always taking into account patient preferences, values and needs as essential to optimal cancer care.
- Patients should have easy access to well designed clinical studies since these are crucial for further improvement in the management of ABC."
Certainly my experience with my local cancer center (although not unpleasant) did not fit within these guidelines. The guidelines contain a review of the latest treatments available for MBC so you might want to check them out further: