Mistletoe injections in United States - SHARE Metastatic ...

SHARE Metastatic Breast Cancer

6,607 members8,142 posts

Mistletoe injections in United States

Sashay2020 profile image
28 Replies

Hello ladies, I have Stage IV ovarian cancer with liver Mets. I noticed that more of you in the metastatic breast cancer community might have tried or have information on Mistletoe injections. I am trying to obtain therapy in the United States. If nothing is available here, then Toronto, Canada would be my choice. Please let me know if you have any tips or information on this. I can’t afford to travel to Germany for treatment and with COVID restrictions, that might not be possible anyway.

I thank you, ladies and send best wishes from Louisiana.

Sashay

Written by
Sashay2020 profile image
Sashay2020
To view profiles and participate in discussions please or .
Read more about...
28 Replies
Garden-Lady profile image
Garden-Lady

elysiacentre.org/dr-claudia...

Dear Sashay, this medical doctor, who works within the British NHS is the lady who prescribes mistletoe therapy for me, which I purchase on her prescription from a pharmacy she works with.

Good luck. I hope you are able to have an online consultation with her on zoom, and manage to import the medicine into the US.

Hugs xxx

Sashay2020 profile image
Sashay2020 in reply to Garden-Lady

Thanks so much for responding. I’m going to keep trying because so much is at stake. Sashay

blms profile image
blms in reply to Sashay2020

I looked into mistletoe. I undeserved that it is MUCH better to IV but at some point I thought Id try organic mistletoe because why not. But then I read recently that it was really hard on the liver. What info do you have

Sashay2020 profile image
Sashay2020 in reply to blms

ncbi.nlm.nih.gov/pmc/articl... is a link, not for a clinical trial, but just as case note on an individual patient. So, of course, it may or may not help me, What has persuaded me to give it a go is that I have read that mistletoe injections have been used in Germany for thirty years or longer and I also read that 70 percent of patients with cancer in Germany are prescribed mistletoe therapy to help minimize side effects of chemo. I have found European studies, but some have been criticized as possibly biased. But the safety record looks good to me so I am willing to try it in hopes that I receive some benefit such as improved quality of life. I plan to continue with chemo. I may be grasping at straws. I have not found anything that indicates the subcutaneous injections are harmful to liver, but That doesn’t mean it’s it the case. I am on the hunt for European mistletoe only, not American mistletoe.

blms profile image
blms in reply to Sashay2020

So European misltetoe different or are you concerned about product being treated?

Sashay2020 profile image
Sashay2020 in reply to blms

I want to take the Mistletoe that is processed and packaged in Germany because I feel more comfortable with that product’s safety profile. I hope my confidence is not misplaced.

blms profile image
blms in reply to Sashay2020

Well page taken down!! Really government!

Sashay2020 profile image
Sashay2020 in reply to blms

Wow. I just clicked on the link I sent you and saw that page unavailable. Never saw that before.

13plus profile image
13plus in reply to Garden-Lady

I’m wondering how long , and how often you have had the mistletoe prescription? Is it in conjunction with your standard therapy, and if you’ve noticed any definite improvement since using it?

Garden-Lady profile image
Garden-Lady in reply to 13plus

Hello 13plus, I have used alternative herbal and ayurvedic therapies for health for over 50 years.When I first had breast cancer in 2012 I followed the allopathic treatment from the British NHS which included surgery and long-term anti-estrogen therapy. I also used mistletoe therapy for two years. After 6 years I was declared disease free, so stopped taking any medication.

In summer 2020 symptoms returned and I received the diagnosis of stage 4 metastatic breast cancer. Since then I have been following the NHS protocol of Ibrance (palbociclib) and Letrozole, which have helped decrease the metastases. I have also been following a complementary protocol which has included mistletoe injections, a plant-based diet, herbal medicine (including mushroom and t turmeric), psychological therapy to help with some underlying issues, and cranial- sacral therapy which had helped to change the energy movement in my body. I also walk every day in nature, up to several miles.

I have lived my adult life (I am now 70) in countries where complementary medicine is respected for its holistic help, and I have quite a bit of experience and knowledge growing and using medicinal herbs.

How does the mistletoe help? It seems to strengthen the immune system's ability to overcome the cancer, and anecdotally, help lessen the side effects of the chemical treatment.

I pay a small amount for my consultations and about £120 every two months for the medicine. Compared to American prices this is very little.

I would like to recommend the book Radical Remission by Kelly Turner to help my friends here take responsibility for shifting the cancer experience and feel more empowered in rebuilding health. This book has helped me enormously.

I also highly recommend Blue Zones Kitchen by Dan Buettner, a cookbook of recipes from people who live where folks live to 100., It is not a diet but a joyful approach to healthy eating based on evidence from people who live very long, healthy lives.

I send you all los of love and strength from Lancaster, England.

TE53_67 profile image
TE53_67 in reply to Garden-Lady

HelloWould you be happy to share your UK Mistletoe consultant details ?

Garden-Lady profile image
Garden-Lady in reply to TE53_67

Dr Claudia Kempfenelysiacentre.org and also

stlukestherapycentre.co.uk in Stroud

Garden-Lady profile image
Garden-Lady in reply to TE53_67

Her email is kempfen@yahoo.com

hdhonda profile image
hdhonda

Hi Sashay,Europe and the UK both do the treatments. The NIH and the National Cancer Institute here in the U.S. have information, but it is not given in the U.S. There appears to be some improvement of symptoms, but no long term benefits.

Sorry the news isn't what you want. I don't personally have any experience. Best of luck. Blessings, Hannah

Sashay2020 profile image
Sashay2020 in reply to hdhonda

Thank you kindly, Hannah. I was hoping for something to help me better tolerate chemo. Take care, Sashay

Garden-Lady profile image
Garden-Lady in reply to hdhonda

Hi Hannah, IMHO improvement of symptoms is a very great benefit.I believe that a combination of therapies, plus taking an active, empowered approach to one's own healing can shift the experience significantly towards a more positive one of living with cancer for a long time, rather than viewing it as a dying process.

Sashay2020 profile image
Sashay2020

Thanks so much for all the information, Sandra. I had hoped to receive treatment in Kansas City from Riordan, but I think they use American mistletoe formulated by a US pharmacy. All the studies I have reviewed were on the German mistletoe extract. I read that 70% of cancer patients in Germany are prescribed mistletoe therapy along with conventional treatment. For now, I will start intermittent fasting and try to pack on as much muscle as I can. If I’m still here and strong enough in January, I will seek treatment in Canada. Again, many thanks. Sashay

love2golfwell profile image
love2golfwell

I have heard good things about mistletoe injections and have read this is used in Europe a lot in the treatment of cancer. I believe this is something that Suzanne Sommers used to fight her breast cancer and I think she has a book out about her journey and the alternative methods she used. I have not used any alternative treatments so far but I am not opposed to learning more about them. Best wishes to you.

Sashay2020 profile image
Sashay2020 in reply to love2golfwell

Thank you. This the first time I wanted to try a complementary therapy. Sashay

13plus profile image
13plus

Thanks for posting all these resources. I like to keep an open mind to alternatives in case I should feel the need to also seek something a little “extra” for myself. I lived in Germany for a year and felt they were way ahead in terms of successfully using herbal- based treatments

13plus profile image
13plus

If you’re able to access it and use it will you update us on if you think it helped? I’d be very interested in hearing some anecdotal experience of it! Wishing you well through your treatment and search for an easier way with it all

Sashay2020 profile image
Sashay2020 in reply to 13plus

I certainly will. I’m grateful for the responses I have received. Sashay

Sashay2020 profile image
Sashay2020 in reply to Sashay2020

Just an update. I started mistletoe injections on Monday. If you’d like more info, please private message me. Sashay

ANNIE6449 profile image
ANNIE6449

I gave myself mistletoe injections during my chemo treatments in 2018, on the advice of my GP who is a functional medical doctor who specializes in integrative cancer treatment. She supplied the mistletoe and the needles, so it is legally available in the US if you find a doctor who will prescribe it. It is an out of pocket expense, of course. It is one of many treatments she recommended to me to help with chemo side effects. It is not a cancer cure or anything like that, just one of the many things you can do to mitigate the collateral damage of chemo.

Sashay2020 profile image
Sashay2020 in reply to ANNIE6449

Thanks, Annie. Are you able to private message me her name location? I will continue my search. I really appreciate your response. Sashay

Pbsoup profile image
Pbsoup in reply to ANNIE6449

Hi Annie!

I know this thread is a bit old, but I wondered if you could also send me the name of your integrative GP, especially if she is in the bay area.

Sending it by p.m. is fine.

I just came across some of your posts, and we seem to share the same interest in functional and integrative medicine alongside standard of care!

Thanks so much

ANNIE6449 profile image
ANNIE6449

I'd be happy to give you her info. (She is in California, but may have referrals in other states?) How do you send a private message?

Jpoetter78 profile image
Jpoetter78 in reply to ANNIE6449

Hi ANNIE7449, can you provide meWith the information, please? I’m looking for my mom who lives in California

You may also like...

Updated Female Breast Cancer Statistics in the United States.

incidence rates of breast cancer have increased slowly and breast cancer mortality rates have...

Mistletoe therapy

Hi I have been reading about mistletoe therapy - has anyone had experience with this therapy or is...

Ibrance & fulventral injections.

Hi ladies. Just wondering how long the above meds have worked for you for MBC? I have been on them...

Fulvestrant injections

injections over this last month and having another 2 next week. I have found them quite painless...

ONJ and Denosumab injection

Friday 13th wasn’t so bad after all. Have a good weekend ladies