My CA 15-3 is rising slowly, I’m scared - SHARE Metastatic ...

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My CA 15-3 is rising slowly, I’m scared

Ycats277 profile image
15 Replies

At one point it was 56 ,that’s when they diagnosed me metastatic to the ribs . With medication it went down over time in 3 years it went down to a 9 . Every 2 months I’m tested, it seems to be creeping back up . 9 then 11 now 13 . I’m scared . I know under 32 is within normal ranges but to be 9 and now 13 ? Has this happened to anyone else? Any advice please 🥰thank you in advance .

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Ycats277
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15 Replies
NPmary profile image
NPmary

Everything about this disease is scary. Most scary is the not knowing, the writing for results, the the specter of progression, the losses. What helps me about tumor markers is that some docs don't follow them at all. What matters about your numbers is that they are Small numbers. Talk to your doc about this. Never hesitate to get a second opinion.Wish you the best.

Ycats277 profile image
Ycats277 in reply to NPmary

Thank you ❤️🌹

Zebra2018 profile image
Zebra2018

Actually when I was diagnosed with MBC to the bone both of CA ‘s were low and normal as if I don’t have any problems! So those are not reliable factors and my onc doesn’t check it anymore Sima

Ycats277 profile image
Ycats277 in reply to Zebra2018

They are and have been reliable for me . My onc told me it is only reliable for some . Yes food means a lot , I eat bad sometimes , I will also try to eat better , thanks 🙏🌹❤️👏🏼🙏

Pachira profile image
Pachira

I started MBC 5 years ago at 60 the lowest was 32 now I’m 160. Just has a CT scan and they’re not seeing anything so TBH that’s fine by me. Just trying to eat healthy and maintain a positive attitude. One day at a time!

Ycats277 profile image
Ycats277 in reply to Pachira

I will do what you said and eat healthier, you are so kind to write , I only wish the best for all of us . Ty for responding always ❤️🙏🌹💕🥰💐

Contrarielle profile image
Contrarielle in reply to Pachira

This is reassuring- my tumour marker is jumping exponentially again, am awaiting CT (nz too poor for petCTs usually!) And hoping my fulvestrant/palbo hasn't stopped working cos I feel otherwise well!

Pachira profile image
Pachira in reply to Contrarielle

Yes they’re not giving us pets here in Olympia Wa US. I’ll be testing again next week so interested to see the tm test especially having stopped Xgeva.

Contrarielle profile image
Contrarielle in reply to Pachira

Good luck, hope tTM settles and you keep well .

Chrissie-Mac12 profile image
Chrissie-Mac12

I would be so happy with those numbers. I was 445 on initial diagnosis and when things went haywire they rose to 5,500. I’m now at 415.

SoCalLady profile image
SoCalLady in reply to Chrissie-Mac12

Mine are 2000-3000. How did you get yours down? My onc hasn't a clue.

Ycats277 profile image
Ycats277 in reply to Chrissie-Mac12

Thank you for help 🌹

Ycats277 profile image
Ycats277 in reply to Chrissie-Mac12

Wow what a fabulous drop 🌹

Winner123 profile image
Winner123

My wife has had CA15-3 from 90 up to 200, just coming down to 150 and we were delighted with that, try not to stress, those are still very good numbers, we'd be delighted with those! I hope that makes you feel better. XXX ❤️

Ycats277 profile image
Ycats277 in reply to Winner123

I thank you for reply but I’m not happy for the reason that mine are lower then you wonderful wife . You are a terrific husband to be so involved in her . She is blessed in many ways because of you 💕🥰

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