Liver and bone: Can anyone tell me some... - SHARE Metastatic ...

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Liver and bone

kduck profile image
16 Replies

Can anyone tell me some of your treatments? I’m her-er+hr+, any type of advice would help. I’m on my 2nd line of hormonal treatment and now Chemo due to liver mets

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kduck
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16 Replies
Gorgeousness profile image
Gorgeousness

Hey - what treatment are you currently on? Amd what have you moved on from?

kduck profile image
kduck in reply to Gorgeousness

I did Ibrance for a few months with falsodex, then letrozole with xgeve and lupron shots those are all my treatments

Gorgeousness profile image
Gorgeousness in reply to kduck

Is it worth asking for Xeloda? I did ibrance and femara, then moved to Xeloda - which is doing a fabulous job. Still working full time. Only issue side hands and feet towards end of two weeks of tablets.

jersey-jazz profile image
jersey-jazz in reply to Gorgeousness

Love your moniker! I think that all bodies are beautiful and, most of the time, they work so well.

jersey-jazz profile image
jersey-jazz

Kduck Do you have other mets besides those in the liver?

kduck profile image
kduck in reply to jersey-jazz

I started with bone only, they have been NED for almost 4 yrs. now my doc wants to start IV Chemo, I do not have a problem with that I just feel as if there’s more to offer before IV.

jersey-jazz profile image
jersey-jazz in reply to kduck

I was diagnosed MBC with a metastasis to the liver. You may have read elsewhere on this page that I underwent a microwave ablation at Memorial Sloan Kettering. I consider that it is a huge success for me and that at the moment, I am NED!

kduck profile image
kduck in reply to jersey-jazz

How many liver mets did you have in order to do this procedure? Does it matter how many mets in the liver?

jersey-jazz profile image
jersey-jazz in reply to kduck

I had one fairly large lesion. I know that there is a limit of a few. I think that it matters what size they are. The doctor told me that it was larger than the scan had shown and that if it had gotten any larger, she would not have been able to get it all. I will tell you that I am associated with Memorial Sloan Kettering because of their prominence in cancer care, not because of the personality of the oncologist.

Lna21 profile image
Lna21

Hello kduck I was diagnosed with Mets on my liver and was put on Ibrance and Letrozole (and Goserelin shots every 28 days). Just have been diagnosed with new met on a vertebrae and my liver is feeling swollen. So I will switch treatment but I am not sure which one, wanting for a genetic result test. I will let you know what would be next.

Did you get any tests ?

Take care

kduck profile image
kduck in reply to Lna21

Just MRI, please let me know what your next treatment will be. My next treatment will be taxotere

Lna21 profile image
Lna21 in reply to kduck

I will! My oncologist said she wants to try a targeted therapy (this is why I am doing genetic testing) and wait for chemo as the last option. I think you are going for a second opinion right ? The second opinion I got also recommended genetic testings and targeted therapy but I guess everything will depend on the results. Best wishes

beachlover65 profile image
beachlover65

Hi kduck, I have had mets to liver and bones since August 2016 with the same type of cancer you have. I unfortunately have lots of liver mets. I am now on my 9th different line of treatment, so there are many things left for you to try. My treatments were, in order, cyclophosphamide and adriamycin, femara and lupron, ibrance and faslodex, affinitor and aromasin, taxol, xeloda, gemzar, a clinical trial drug named ipatisertib, and now abraxane. I may need to switch again soon, but my doc is very positive and says there still are many things we can do. Stay positive, hopeful, and strong! Mary

kduck profile image
kduck in reply to beachlover65

Thank you so much and I hope you find a treatment that will work!

kduck profile image
kduck in reply to beachlover65

Did you doc ever try taxotere? Which is an IV Chemo, it will be my next step and I have only done 2 hormonal treatments Ibrance, falsodex, lupron once falsodex stopped working I went to femara and xgeve for my bones

beachlover65 profile image
beachlover65 in reply to kduck

No, but it is on my list. I, too, do Xgeva for bone mets.

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