90 days on everolimus and letrozole. Some side effects. Not terrible. But, the constant ache under my ribcage and heartburn/gastric issues have me very worried the liver lesions have increased. Wheezy breathing and a bit of a cough are also concerning.
Bottom line, we know nothing until we have scan results. Hopefully, my onc will have them by my appointment this afternoon.
Love to all of you dealing with the constant anxiety.
Andi
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Just left the consult. Primary lesion has more than doubled. 2 new friends. Treatment change required. 3rd treatment in 18 mos. I've had only one good scan since this began. Ugh
I’m with you for frequency of treatment changes....I’m on my 4th in two years....but I’m grateful for every one (though a lot of it hasn’t been fun, has it?)....just keep me alive long enough to find one that works! Good luck!
It's hard to stave off those pessimistic thoughts. At stressful times I can swing wildly between imagining both good and bad outcomes. I know it's useless to offer advice about not worrying but I am sending you positive vibes for good scan results. Hopefully it's just acid reflux. I have been on Lansoprazole for that for years but the symptoms were exactly as you describe with an aching pain under the ribcage. That was long before I had MBC. As far as wheezing and coughing go I tend to do that as soon as I start thinking about it. Wishing you all the best.
I am ok but struggling with the exhaustion that my chemo is bringing. My oncologist lowered my dosage by 20% to see if that would help. It did with most of the side effects but the first two weeks I’m useless and just sleep. 😩. My first bone scan since starting chemo is Thursday. Nervous as heck about this. Thanks for thinking of me ❤️❤️
I'll be thinking of you Thursday. Maybe the exhaustion is from the meds acting on the cancer. Please let us know, and take good care of yourself. Much love, Andi
Oh my, I figured you were having to spend your time coping with the meds/chemo. Sorry to hear about the struggles but glad they are somewhat alleviated. Here is hoping for good results on Thursday. I'll be thinking about you. I think you are right. The exhaustion is from the treatment getting rid of the cancer.
You are in my heart and prayers as you go for your mri. Understand your break in posting, but hope you will post your results. We are all here for you, miss you and wish you the best outcome.
I got it yesterday. My onc is good to let me know quickly. The primary tumor has doubled two new small lesions have joined the party. New treatment on the horizon. Thank you for your well wishes! Andi
Wow. That is quick. Sorry it wasn't so good news but not bad either. At least now they can change to something more effective to treat you. You are welcome to all the well wishers. That is what we are good at!!
I’m so sorry that you are feeling this anxiety especially since I am just beginning this treatment. What I find hopeful is that there is another treatment and that maybe
Better. In the meantime I believe this is something you cannot control so try to be in a peaceful place.
I think that what Marioots is suggesting is a very good way of thinking about this mess. The idea is worth a try. Meanwhile, I try to mentally jump over it all and make plans for the future, regardless of the reality. It seems to put my mind momentarily on "pause', regarding the multitude of questions that having MBC poses.
Please try to think of something that made you smile, laugh and/or be happy and keep that thought for a little while. Perhaps you are smiling, now.
It's so funny you say this. Last week I bought a house! A 102 year old house that has 4 sets of steps to the front door. I will be leaving my home of 30 years.
Given yesterday's results, I'm feeling like a fool, but I needed a distraction. A big change. I spend all my time online shopping for things to decorate with.
Thank you for your suggestion and helping me feel a little less stupid.
God knows, you are not stupid! Furthermore, good luck and glad tidings with your wonderful new/old home. I am sure that you will work hard on it to optimize its' beauty. This is such a positive thing and such a good platform for creativity and renewal.
That is what I forgot to suggest and now you have done it. Got a new project to concentrate on instead of scans! Sounds brave and exciting moving to this new place after 30 years. If you feel like it, it would be nice to see some pictures of the place and the new treatments. I love old houses. So much personality and history. I am impressed.
In response to ChrisVict. I put it in the wrong place:
Thank you. You are right there is little to no control. The "What ifs" will drive you crazy. Hopefully, I will find out today which drug they have in store and get started ASAP. I have to stop burning through them so quickly though.
I hope you are feeling a bit more settled and your work stuff is less of a worry. We are here for you!
And, so sorry to hear your news. Hope things turn around soon.
Hi Andi
This treatment must be the right one for you!!! It’s going to give you time to work on your house project. I think it’s a great idea to have something else to make plans for and to absorb yourself with.
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