MBC to small intestines

[AnnaP668]

Does anyone else have MBC to the small intestines?

[Justme153]

I guess this cancer can go anywhere!!! How did you find it there? Did you have pain or did they find it by pet scan , Ct scan or colonoscopy?? I use to think breast cancer only metastasized to liver , lungs, brain and bones. But the more I read it can be anywhere!

[BlueEyedC in reply to Justme153]

Some MBC cells were found on my colon during a routine colonoscopy, I had a PET scan afterwards, and it didn't show up there, so my onc said it's because it was too small to be detected, so it must be really small. She hasn't changed my treatment though. She said it's unusual for MBC to metastasize there, but doesn't dispute the findings. It's on the outside of the colon.

[Justme153 in reply to BlueEyedC]

I had just done a cologard test and it came back bad. So now I have to have a colonoscopy I'm betting that won't happen till after this virus stuff now. So who knows when that will be. Oh well !!! So did your oncologist say what they will do about it if they are not changing your treatment?

[AnnaP668 in reply to Justme153]

I've been given Ibrance and Faslodex but we have no good way to determine if they are working since nothing shows up on testing. Not ready for another surgery every 6 mo.🙂

[BlueEyedC in reply to Justme153]

Just keeping the same for now.

[Staysha in reply to Justme153]

Same here. I just had a color guard and it came back bad. Told me I needed a colonoscopy. Haven’t scheduled it yet.

[Justme153 in reply to Staysha]

Ya I don't think they will schedule these till this virus blows over. If they were to call me about it I won't except an appointment till at least September !! And then I'd see how things are at that point.

[AnnaP668 in reply to Justme153]

Just started treatment in February after my diagnosis in Jan. I had chemo and rad, completed in 2018, for my original BC.

[AnnaP668 in reply to BlueEyedC]

I'm sorry to hear that.

[AnnaP668 in reply to Justme153]

I was having stomach pain, nausea and vomiting intermittently for 5 months. Nothing showed on any testing. Finally had surgery and multiple tumors of varying sizes were found. Only 1% of BC patients get this mets.

[Rbeth in reply to AnnaP668]

I have METS in my stomach lining and my rectum. I was having the same symptoms for 9 months. My first gastroenterologist said I had a hiatal hernia And Gerd. My second was no help, my third figured it out. I finally had a gastrojujunostomy as my pilorus closed. This is an unusual place for METS. Reenie

[AnnaP668 in reply to Rbeth]

I'm so sorry. Are your symptoms gone now?

[Rbeth in reply to AnnaP668]

Yes. Taking it day by day. We are in upstate NY. My daughter, her husband and son moved out of NYC and are staying with us. This is the silver lining of this time. I don’t see them very often. I am 69, own a business and am staying home now.

Stay well. Reenie

[Justme153 in reply to Rbeth]

So Rbeth what medication are you on ? What type cancer are you ? How long is it since your initial diagnosis? What treatment do they do for Mets to the rectum? What symptoms did you have for the rectum Mets?

[AnnaP668 in reply to Justme153]

Hi. I had intermittent stomach pain, nausea and vomiting. I had MRI, MRE, colonoscopy, blood work, CT scans over about 3-4 mo. Nothing showed up, so I had laparoscopy for lysis of possible adhesions. Turned into a laparotomy because no adhesions found. The surgeon found 2 larger tumors in my small intestines which were causing the intermittent bowel obstruction. He removed them, a section of bowel, and said. There were mainly more small tumors but they went cancer. Pathology report said they were with extensive involvement. PET still showed nothing. Only 1% of MBC have mets to small intestines. Guess I'm just that "special"! Haha. Sorry for the long post.