I want to hear your story

[AuntMildred]

My daughter and I are both dealing with MBC. I'm doing quite well on Ibrance and Arimidex. She is doing chemo and very weak. She has pain from bone mets. My concern is that she acts like she's giving up. She doesn't feel that she is going to make it and I want to encourage her that many are living years managing the disease. I'm curious, have any of you had success with fenbendazole? I would like to know what you think. I've heard good things, but seems to good to be true. Thanks so much for your input. Blessings to all.

[Hidden]

I'm so sorry your daughter is having such a hard time. Chemo is so tough, but dealing with the pain is so demoralizing. I hope there's a way to control it🙏

I don't know if you're on Facebook, but there's a group I follow, Fenbendazole cancer support group. I don't take it, but I want to learn everything I can about it, so I follow the group.

I do believe someone in our group here takes it, or is thinking about taking it.

Sending positive thoughts for your daughter and you!

[Hidden in reply to Hidden]

The Facebook page, "Healing Cancer Study Group" (an excellent resource on all alternatives), also has a thread on Fenbendazole .

Anja

[MyMiracle13]

Hi. I have been taking Fenbendazole since mid August. I haven’t experienced remission or anywhere near that but I do believe that it is working for me in terms of lowering my tumor markers. The reason I started taking Fenbendazole is that my June and July blood tests showed increases in tumor markers first by 10 points then 12 points. After I started taking Fenbendazole, the markers went down by 10 points then 2 points. I think that we have members on this forum who have achieved NED while taking Fenbendazole. Hope they reply to your post. Praying for you and your daughter.

Maria

[hopenowandtomorrow]

Yes, I have been taking Fenbendazole since early August 2019.

I was diagnosed April 2019 with stage IV ER+ bone Mets - metastasized Breast Cancer. May: I had SBRT on the tumor in my left pelvic bone. Started IBrance /Faslodex/Xgeva treatment.

In November 2019 my PET Scan came back NED.

I am participating in the Oklahoma Medical Research Foundation study on results of cancer patients taking their traditional meds plus Fenbendazole.

So far, I am very happy with Fenbendazole. No side effects & it seems to be working for me.

❤️🙏❤️

[mariootsi in reply to hopenowandtomorrow]

Wow! There is a study with fenbenzadole! Amazing! Let us know the conclusions.

[Lovemarie in reply to hopenowandtomorrow]

He I know this is a while back any update on your success or process.. please🙏

[hopenowandtomorrow in reply to Lovemarie]

Hi Lovemarie: I’m on my 37th cycle of MBC treatment. PET/CT in early Feb still showed NEAD. I added a few more pathway blockers with Joe Tippen’s announcement last Fall that he found adding some of the items in Jane McClellen’s book helpful. You can go to his webpage & find those. Awhile back he increased the Fenbendazole from 3 days a week to 7 days a week. I made those adjustments.

I was having pain in my pelvis from fractured pubic Ramus bones from the previous cancer. I got radiation & now I’m out of pain.

Praying you have success on your treatment plan!

🙏❤️🙏

[Sarabyyrle in reply to hopenowandtomorrow]

Hi Hope. Can I ask what you stated taking from Jane’s protocol? Ty!

[hopenowandtomorrow in reply to Sarabyyrle]

Hi Sarabyyrl: I take Loratadine Tabs 10mg 1x/day (blocks cancer pathway)

Plus Joe Tippens’ protocol (which has incorporated parts of Jane’s protocol)

One packet (1 gram)/day of Panacur C (Fenbendazole) 7 days/week.

Ultra Onco Adjunct 1, 2, & 3 Three Pathways -m

1-Frankincense, Hemp & Nano MCT Oil (Cell Division & Proliferation & Differentiation)

2-Cysteine-Curcumin (Clearing Cell-Cycle & Modulation)

3-LPS bioactive Berberine to normalize blood glucose levels (Cellular Glucose Metabolism)

🙏❤️🙏

[Sarabyyrle in reply to hopenowandtomorrow]

Ty so much! Do you take the Berberine every day? How are you doing?

[hopenowandtomorrow in reply to Sarabyyrle]

Hi Sarabyyrle: I’m doing very well. No progression so far. I take everything every day. Cancer drugs (Ibrance 21 days, Faslodex & Xgeva monthly shots) plus the Joe Tippens & part Jane’s protocol. Covering all the bases I can 😻!

🙏❤️🙏

[Sarabyyrle in reply to hopenowandtomorrow]

Glad you are doing well. That’s a long time you’ve been on the medicine and supplements. Have you been on Xgeva for 4 years? Are your bones have ok density?

[hopenowandtomorrow in reply to Sarabyyrle]

Hi Sarabrryle: Yes, I’ve been on Xgeva for over 4 years. Bone density test done this year was normal for my age. However, I had pelvic radiation so the sacrum & pubic ramus ring have fractured as a result of the radiation.

I am very cautious about doing radiation going forward. I did have bone cement put in my sacrum. The pelvic ring fractures are inoperable. I do a lot of physical therapy to build muscle strength to keep my bones strong & to walk without assistance.

I’m thankful to God that I can live an almost-normal life as I work to overcome obstacles each & every day.

🙏❤️🙏

[AuntMildred in reply to Lovemarie]

I haven't added much to this sight recently. The above replies were related to my concerns about my daughter. Well, she did pass just a few months after. I have also been dealing with it. I'm doing quite well, but still feel very guilty that she is gone and I'm still here. Should not be that way. I miss her so much. I love all of the encouraging messages. I have a hard time having anything to say about the benefits of all this medication and I want to be encouraging. I stopped all medication and put it in the Lord's hands. Blessings to all.

[Barbteeth]

Hello

I was diagnosed in April 2018 ...24 yrs after primary/mastectomy but no other treatment

Now taking Ibrance letrazole and denosumab...I tried the COC drugs but found the side effects hideous so I’ve just started the fembendazole this month...I’m trying anything really in the hope it may help...at the moment I’ve had progression in my liver so feeling disheartened

All the best to you and your daughter...I have two daughters and just dread this happening to them...it’s so unfair

Barb xx

[AuntMildred in reply to Barbteeth]

Thank you so much for sharing. It's hard for me to even know what to say to her, but I feel she is giving up. I can't let her do that.

[Barbteeth in reply to AuntMildred]

I have a lot of pain from my many bone mets and when it’s really bad I get very fed up so I know how your daughter feels...it’s also scary thinking of it getting worse...I saw a pain specialist a few months ago and she prescribed me some slow acting morphine which is taken twice a day then some ocycodone for any breakthrough pain

I’ve tried these but find they make me drowsy so I sort of take a mixture of different strength painkillers depending on what I’m planning to do e.g if I want to ride my horse I’ll increase the dose but if lazing about at home I’ll cut down to maybe just paracetamol and ibuprofen

There’s really no need to suffer with pain as there are lots of meds to try which will allow you to enjoy activities which you enjoy

Barb xx

[AuntMildred in reply to Barbteeth]

The bone mets are difficult. She is unable to walk without a cane. I suggested, maybe CBD oil, but she was told that it is metabolized through the liver and she has liver mets. Gals talk on here about MBC being a roller coaster - it really is. So many other pain meds make her drowsy or feeling loopy. Appreciate hearing from you.

[Barbteeth in reply to AuntMildred]

I wish medical people would agree on taking of supplements...the COC clinic in London recommended CBD oil to me and I know for certain that many ladies on here take it...also Joe Tippens protocol includes it

The liver metabolises all fats and oils

Barb xx

[Nmartinez15 in reply to Barbteeth]

I am with you on this. The worse thing is that doctor put in ppl head that supplements dont help at all and people believe it. 🤦‍♀️

This is my first month taking Ibrance and I dont feel the tiredness that I have before and I think bc my supplements enhance my immune system and also start doing acupuncture for my back pain. It's just mild pain but I get stress out for little things and I need to get my stress under control bc stress is not good for cancer. I have next pet scan on February and I hope my lesion still stable.

[Barbteeth in reply to Nmartinez15]

Hi there

I also have acupuncture for my pain and it helps ...the big surprise was how it stopped my night sweats

I also take curcumin glucosamine and cod liver oil

Barb xx

[Nmartinez15 in reply to Barbteeth]

Plus if it can help me with hot flashes. Mine are not so bad since I take curcumin and ginger root tea. And my sleep is better too. 😴

[Barbteeth in reply to Nmartinez15]

Yep ginger is the business...if I make a juice I always chuck a piece of fresh ginger in...tastes lovely...I also take ginger capsules I’m convinced they helped with my nausea after radiotherapy

Barb xx

[hdhonda in reply to AuntMildred]

I don't know anything about CBD oil but the FDA has put out warnings that they have not had approval and some may have things in them that could be harmful. This is in the U.S. I don't know about the UK. Blessings, Hannah

[Barb5 in reply to hdhonda]

CBD oil should be bought in a dispensary where you know your getting pure CBD. I have my medical marijuana certificate in Connecticut. From what I have read and researched I would never buy it from a store or on line because you don’t know what additives etc. that are added to it. It can really help with pain and help to relax you to help with sleep. I was told should have small amount of thc in it but I don’t like the effects of thc can make you a little high or paranoid but I found what is called thca at my dispensary and there is no high with that. I use a spray under the tongue of each and it works great. I hope I have been some help with the experience I have had with it.

[AuntMildred in reply to Barb5]

You have been very helpful, thanks.

[Hidden]

Hi Mildred,

I am not taking fenbendazole (I am taking the human version, mebendazole, instead). While your daughter is in so much pain and is feeling weak I can see why she would be feeling disheartened and even like giving up. But I hope she won't. I hope that she will be able to get the pain under control and then hopefully she will take heart. Can you advocate for your daughter? If your daughter gives her permission, maybe that is an option so that you can try to find ways to manage the pain and side effects.

Please keep us posted on how you and your daughter are getting along. I hope that she soon feels better and sees that there is a lot to live for.

Take care,

Sophie

[AuntMildred in reply to Hidden]

Thank you so much. How are you doing with mebendazole and why did you decide to try it?

[Hidden in reply to AuntMildred]

You're welcome. I started taking mebendazole in April as part of the COC protocol (metformin, atorvastatin, mebendazole and doxycycline). I'm doing well with it. My last six CT scans have been stable with shrinkage of the primary tumour each time, which I don't entirely attribute to that, as I'm going back to the summer of 2018. So I would say conventional treatment has also played a role. With the last CT scan in October my oncologist told me the radiologist stopped measuring the tumour a while ago, as it keeps shrinking and it's harder to see on the screens. She also examined my breast and mentioned it was hard to tell where the tumour was, as she was pinching healthy tissue.

My oncologist has me on zoladex, zometa, letrozole and she also prescribed the supplement Adcal D3. I'm also taking additional supplements and off-label drugs.

Sophie

[LouisaMay]

Hi, Aunt Mildred,

So sorry to hear you are both in this position, what a bummer one might say!

I have been taking fenbendazole since August and have seen my tumour markers go down month on month (35 at last count, below 30 is considered 'normal'). I'm also taking the conventional meds (Letrozole, Ibrance & Denosumab) and was already reacting well to those before August. I will not know for certain where I am till the next scan which may be around Feb/March. The one thing fenbendazole has done for me is give me hope, I have read of several people who have gone into remission with breast and many other kinds of cancer. Side effects are non-existent for me so in my case it's a complete no-brainer - nothing to lose and possibly everything to gain. Also I have also found guided meditations (free on Youtube) extremely useful for reducing stress and fear, both of which can knock out your immune system. Sending you both heartfelt good wishes, Angela xxx

[Justjade]

I’m so very sorry you are both dealing with this cruel disease. Can you tell me if you or your daughter are triple negative. Take care. X

[Nmartinez15]

I am sorry about your daughter. I feel like that when I was dx for 2nd time and this time my cancer spread to my spine and the worst thing was that my oncologist knew about the lump and didnt do anything or listen to me. Anyway, she needs alot support around and positive ppl that will encourage her to keep going and not give up. The last thing we cant lost is hope, but we need help!! When you have positive ppl around her that will boost her confidence. Also, please dont let the doctor give depression pills we have enough toxins to take with chemo and cancer meds and we dont need more. There is alot things to take natural for anxiety and stress and feeling well. If one doesn't work just try another one. Well, that what I did until I find my natural combo! Try to go with her to get acupuncture! Omg! My shoulders and neck pain went away in 2 visits and they can also treat you for other things. In my case stress cause all type of pain so I need to address my stress and not the symptoms. If I go the doctor they will give pain killers for sure!

I didnt believe in acupuncture, but I decide to give a chance bc I hate take pain killers and I am glad that I did. Please make sure it's a good one w good reviews.

Give her hope that the pain will go away in the near future. When I was dx this year I was in alot pain and i could not walk either. But the truth is the pain was caused for other things not only the cancer. I have 4 surgeries this year and the cancer meds also cause pain, but it will get better. I can testify that and I still get pain but not like before.

How old is your daughter? She needs to fight this monster and she will succeeded! We need to do everything or try every thing until we find the way to have quality of life while we face this illness. How spread is the cancer?

[Hidden in reply to Nmartinez15]

Hi,

I'm glad that you have found relief from your symptoms using acupuncture. There are so many things we can do to help ourselves.

Thanks for sharing what has worked for you!

Sophie

[Nmartinez15 in reply to Hidden]

You're welcome!

[8576]

Please tell her after a diagnosis of MBC , breast to left hip, I had no progression for 6 years on the first medication. Also, I was told there are lots of people walking around with MBC past 12 years. There is so much ammunition to fight this disease. The difficult part is getting through the treatments and waiting for the medicine to do it's job.

And of course she and you have an enormous cheering section in this forum! Boy, they sure helped me. Tell her also, it is normal to feel discouraged and down. Just hang in.

Cheers, June

[Hidden in reply to 8576]

Hi June,

What an encouraging, inspiring response! We all need to hear about patients who have been doing well for a number of years, as that can encourage us to keep going.

Thanks again,

Sophie

[8576 in reply to Hidden]

Your are welcome. I am happy if I return some of the encouragement I have received in this forum.

Cheers, June S.

[Ps103-BTLOMS]

So so very sorry to hear what you & your daughter are enduring. I know my daughter has become a fanatic about her bodybuilding and knowing what her genetics has to say about her health. Also, she is an R.N. and works at an oncology outpatient clinic. She already had inherited in her teens her Dad's RA and she's more driven since my BC diagnosis. Fortunately, Humira was developed and has brought great relief from the RA suffering.

I am switching to PIQRAY as my tumor markers have been gradually climbing in my 2nd year on Ibrance. Latest PET scan and brain MRI shows mets contained only in bones... no major organs or brain. I was told that is considered a less concerning a situation as stage 4 MBC goes.

I believe I've had a fatty liver for some years. Early on in my initial diagnosis (2011) I tried the Budwig protocol which requires a lot of flaxseed oil several times a day. I noticed my abdomen swelling over my liver back then and now assume all the oil taken then was the reason.

I was recently tested after a nasty bout with vertigo and a fasting glucose test showed me at the low end of being pre-diabetic. Now I am trying to lose weight and doing chair aerobics to reverse help my liver along. For a long time I tried to keep my weight up as a positive sign in terms of cancer. But now I have this glucose issue to consider. Hyperglycemia is a major side effect w/ PIQRAY so time will tell how my glucose levels react.

My oncologist didn't respond to the COC protocol when I mentioned it. I was on doxycycline last summer for an infection & open sore last summer at the site of my original breast tumor and it healed it all up. My TMs lowered significantly around that time but unsure if it was the doxycycline and/or followup radiation treatment.

I will remember to keep you both in my prayers. My experience is that it is so easy to feel disheartened by comments made by family & friends. Even just being asked about my treatment's progress started making me not want to communicate. Few people can rightly share the journey and be the support one really needs. Your situation is certainly extra unique and every mother reading your post feels the depth of lovingconcern you are enveloped in with your daughter... .💔🙏

[PJBinMI]

I can only imagine how hard it must be to have mbc and have your daughter have it too! So much harder to see our kids struggle than to struggle ourselves. My mother died from lung cancer in 1985 and that was much harder on me emotionally than having this lousy mbc myself has been, but if it wer e my daughter, I'd be super upset! I think getting her pain under control is really important. Perhaps a second opinion from a bc specialist onc? I don't know what the COC protocol is, and have not heard of fenbendaole before. I wish soembody here would explain those. I do take some supplementss that my previous primary care doctor recommended to reduce inflammation, which is one of the things that is involved i n cancer: 1 cup of tart cherry juice, fish oil, curcumin(aka turmeric) and glucosamine/chondrotin. The compounding pharmacy where I get an Rx filled has started carrying cbd products that are only sold at pharmacies and I take the tincture and use the lotion on places I have arthritis. Somebody here mentioned a TM going up 10 points. TMs are not so precise that 10 points make a difference (at least the CA27-29 that is often used for us). Most oncs don't change meds based only on TMs but may use them to decide to order scans. As a long timer (15 + years) who has gotten years out of each anti-Estrogen , we've watched my CA 27-29 climb for a long long long time before scans have shown progression. I know I have been really lucky to do so well for so long. I hope your daughter gets good pain relief very soon.

[Hidden in reply to PJBinMI]

Hi,

The COC (Care Oncology Clinic) protocol refers to the use of metformin, atorvastatin, doxycycline and mebendazole as off-label (or repurposed) drugs to treat cancer. Fenbendazole is a dog dewormer that a man called Joe Tippens used on the recommendation of his friend, who is a vet. According to Joe, it cleared his body of metastatic cancer.

Sophie

[hopenowandtomorrow in reply to Hidden]

Here is the Joe Tippens story & PROTOCOL: mycancerstory.rocks/single-...

[AuntMildred in reply to hopenowandtomorrow]

I have heard his story. Does seem to make sense. Not sure there will be a real study on it as it is quite inexpensive. I have good insurance, and it has already paid over $95,000 for my Ibrance this year. Doesn't seem right$$$$$$

[hopenowandtomorrow in reply to AuntMildred]

Hi Aunt Mildred: This is the study they are doing on Fenbendazole at Oklahoma Medical Research Foundation. I am participating in it. tulsaworld.com/communities/...

This is a much longer article that discusses other top Cancer institutions also researching it. fenbendazole.s3.amazonaws.c...

I am doing the Joe Tippens Protocol with my traditional cancer treatment...IBrance/Faslodex/Xgeva.

❤️🙏❤️

[AuntMildred in reply to hopenowandtomorrow]

Thank you so much. Will look into it.

[AuntMildred in reply to hopenowandtomorrow]

Just finished both articles. The second one was very good and promising. How is your treatment going? How long have you been on it? Any side affects?

[hopenowandtomorrow in reply to AuntMildred]

Hi Aunt Mildred: I posted this several weeks ago. No side effects at all... healthunlocked.com/share-me...

[AuntMildred in reply to hopenowandtomorrow]

Thank you. I read it again. I don't think you mentioned Fenbendazole, but did mention Joe Tippens. I didn't know anything about him until recently. So glad you're trying it, I might be right behind you.

[hopenowandtomorrow in reply to AuntMildred]

Hi Aunt Mildred: This is what I am taking from the Joe Tippens Protocol: healthunlocked.com/share-me...

All the best to you & your daughter ❤️🙏❤️

[AuntMildred in reply to hopenowandtomorrow]

Perfect. Just what I needed to see.

[Hidden in reply to hopenowandtomorrow]

Thank you for the link. Yes, I have read Joe Tippens' blog, and been in touch with him personally. x

[mariootsi]

So sorry you are both dealing with mbc. That is just horrible.

The shock of this dx is enough to make you want to give up especially if you are weak from chemo.

It also takes time to get over the shock!

Maybe you both can talk to your onc about getting her some counseling at your cancer center.

Also, maybe shecan post here and see the remarkable stories of the amazing women here who are living long with this disease!

I'll pray for strength for you both as you support one another through this rollercoaster!

Love and hugs,

Marianne

[AuntMildred in reply to mariootsi]

Thank so much Marianne. I've shared the post and I know she has read many of these. I think that knowing so many are dealing with this is bit of an overload. I have found that most of the women are upbeat and encouraging, considering what we are dealing with.

[Hidden]

I was diagnosed with cancer in my hip in December 2017 (after 1 1/2 years of battling hip pain and loss of mobility which no doctor sending me for mri). Biopsy then showed it was metastatic breast cancer. I have never had breast cancer previously so this was a shock. I have severe bone Mets to most of my bones and a lot of pain. I take hydromorphone cont and was taking Vimovo but switched to Arthotec due to allergies. The combo helped my pain a lot. Make your daughter’s doctor give her pain meds. Pain is debilitating both physically and mentally. I was ready to give up due to my pain but now that it is under control I have a new outlook.

[AuntMildred in reply to Hidden]

She is at the point, where you were, dealing with so much pain. I'll let here know what worked for you. Thanks . So sorry anyone has to deal with this. Glad you are doing well now.

[Hidden in reply to AuntMildred]

Thank you. I have found I have to force the Doctors to listen. I hope she can do this or maybe have somebody with her that can.

[nstonerocks]

Dear Aunt Mildred,

Has your daughter seen a psychiatrist? I ask this because I am going through a rough patch and there are times I feel utterly hopeless. I hate to think of how awful your daughter feels. There is nothing that can take away the realities of this disease,, but perhaps the proper medication will help your daughter engage in life with more calm and peace. Unlike other posters I am totally in favor of the appropriate psychoactive meds, especially in extreme circumstances. Your daughter certainly fits this picture. Are these meds toxins? Quite frankly living each day trapped in a bottomless misery is the most toxic circumstance I can think of. There are medications that can help. I am living proof. I was staying in bed not eating, totally miserable until I decided to do what I knew I had to do to live my life, MBC and all, with any quality and purpose. We only die once, but when you are so trapped in anxiety and depression, every day feels like a death. I hope you will help your daughter go for an evaluation and encourage her to seek treatment for her emotional well being. Please ask her to read my post. This is no way to live Praying for you both.

[AuntMildred]

I agree, it's no way to live. What you suggest makes sense. I'm not always sure I'm using the best works when I make suggestions. One minute she seems to need my help and the next she want to figure it out for herself and wants people to leave her alone. It's a fine line. Thanks for your suggestion, so glad you are doing better. So hard to know what to do to help. I don't have bone mets, so fortunately have not experienced the pain she is in. She said the Dr. indicated that she has bone fractures from the mets. Ugh!

[Hidden]

AuntMildred,

My gosh! Just unbelievable and I can only imagine what you're going through! Like many of us, I live in fear of this disease getting my daughter.

I'll mention that my sister and I have been fighting this disease simultaneously and very much "together". I recognize that this is a very different dynamic than mother-daughter...there's a degree of heartache re: a daughter that is much less with a sibling...but we have become so much closer over the course of our disease and so helpful to each other (well, I know she's helpful to me). And not just in terms of bouncing ideas around, sharing info (e.g. she's much more science-oriented than I am), giving encouragement, etc., but re: coming to terms with what we've got through countless honest discussions that only we (and I include the women on this site in the "we") can truly understand. We had actually been sort of estranged for years before we were first diagnosed, and "reunited" in-person as two bald middle-aged women after not seeing each other for many years. This has definitely been the silver lining in an otherwise very big dark cloud.

Since I can't hope the cancer away for you and your daughter, I'll hope that benefit from having each other during this time and that your relationship helps you both.

Very best wishes,

Lynn

[AuntMildred in reply to Hidden]

So glad you have reconnected with your sister. There are some good things that come from this. My husband didn't like me saying this, buy I said "I'm glad to know how many people loved me before the funeral". I was just joking, but somewhat true. As a mother, I want to make her well and fix it. As a daughter, she still wants to feel independent and count on her husband. I need to respect that and just asked her to tell me what she needs. Thanks so much for your concern. I wish you and your sister well. Thank you

[beaverstate]

I have been taking fenbendazole since March 2019 added to letrozole and ibrance. I had bone mets in 3 places and some lymph nodes auxillary to breast tumor on one side. I also started turkey tail mushroom and cbd and thc immediately at diagnosis. My original tumor is gone and 2 of the 3 bone mets are gone and lymph nodes look normal. I was getting better before fenbendazole addition though based on marker numbers and feeling original breast tumor. here is testimony of another woman I know about fenbendazole (she also is hormone+Her2- : This is my first post on the site. I am so grateful for Joe Tippens sharing his story. On October 24th I had a CT scan. The first since May when I was diagnosed with Invasive Lobular Carcinoma Breast Cancer ER/PR+ HER2-

I am 52, very physically active, ride horses, practice yoga, love to cook, low carb Mediterranean diet...very healthy until the month before the diagnosis. My only issue has been what I call irritable bowel (self diagnosed) most of my life, which is what took me to the hospital...but I managed it with diet and exercise. So the cancer diagnosis hit us hard. When they found the breast tumor in May it was 5.8 x 1.4 x3.7 cm. There were two slightly enlarged lymph nodes and it had spread to all of my bones and gastrointestinal area...specifically kidney area. My kidneys failed in June and I had to have bilateral nephrostomy tubes. The doctor in Seattle told me I would never get them out. I started Letrozole in May but decided Ibrance was not for me after two weeks taking it. I started the “Cure” (Panacur) the first of July. I took it every day until I ended up in the hospital with a blood infection the end of July. (I take the liquid cattle and horse wormer...about 1 1/2 teaspoons in water along with the vitamin e, theracurmin and CBD) My oncologist asked me to stop while I was in the hospital. I started again August 5, four days on three off. My kidneys improved and while I was on iv antibiotic we decided to remove nephrostomy tubes! My numbers continued to improve although it took a while for my my white blood count to start coming up. I started juicing, following Chris Wark. I gained weight and strength back. Finally, I got to have a scan October 24....it showed no breast tumor! It is gone! My blood work showed my cancer tumor marker was down from 56 in May to 26. Last week I saw my amazingly supportive oncologist. I had blood work. My blood tumor marker was 19. All of my blood work was perfect! My kidney function was perfect, white blood count was up to 2500 (lowest was 600 when I was in the hospital with the blood and kidney infections)! He said the words to my husband and me...you are in remission...

I have prayed. I believe the Panacur along with Letrozole has helped me. I am juicing, taking supplements, and living life. I am not settling with remission...I believe we can heal...anything, hearts, minds and bodies. I think it is all the same actually. I know it could not have happened without the the love and prayers from not only my family and friends but from people who I have never met but have love in their hearts and believe in the power of prayer.

I am so grateful for my oncologist. He has explained things and listened to my concerns. He has supported my choices and treated “me”...not a statistic. My unsolicited advice is if your oncologist gives you a hard time for thinking outside the box..find another one! I pray for each person and their loved ones going through this journey. We may not be able to control the the things in life that happen to us...but we can absolutely control how we choose to react. I am choosing to not be a victim or ask why (very often 😊)...I am choosing to research, believe and do it! I pray the medical community will look at fenbendazole and the success stories. I have so many questions and we need research.

Keep the faith.

I wish you all a blessed Holiday Season."

[beaverstate in reply to beaverstate]

if she was using 10% suspension she took a large dose of 739mg per dose. I take 400mg per dose 4 days on 3 off. a friend with melanoma started at 400mg 5 on and 2 off and within a month his walnut sized tumor under his skin had disappeared and the doc scheduled to needle biopsy told him they couldn't do it as ultrasound showed it was either gone or too small to needle biopsy.

[Pbsoup in reply to beaverstate]

Out of curiosity, and not to hijack this thread, what is your dosage of turkey tail mushroom? I am taking it, but my integrated doc was a bit vague about dosage.

[beaverstate in reply to Pbsoup]

Hi, my source for it has been an Oregon company "Myriad Mycology" (pure powdered turkey tail bulk) and they recommended taking 1 tsp (2grams) 2x a day (4g a day) which is what I started with but after seeing Paul Stamets video he showed that the dose dependent benefit was more than double at 6 grams a day (1.5tsp 2x a day) so I increased to 1.5 teaspoons of the powder 2x a day (am and pm) watch this video: youtu.be/mWT09ZDqFlE(Not working as expected?)

[AuntMildred in reply to beaverstate]

Wow. Thank you so much for sharing your story. You're amazing.