Currently on Everolimus and exemestane - SHARE Metastatic ...

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Currently on Everolimus and exemestane

Innira profile image
2 Replies

Ca 15 lowered from 400 to 100 but mother s appetite is low. Is anyone experiencing the same

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Innira profile image
Innira
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Marieleb profile image
Marieleb

Hi. I am also on Everolimus and Exemastane... Started in July. Yes appetite is very low ( especially in the morning) and my taste is also affected ( when I am on COC protocol too so not sure if last side effects come from those medication)... I have loads of pain in my muscles , joint and bones ... Finally I am just about to see dentist as I have extreme pain in the crown that was put on less than a year ago... Not sure how much of it is related to meds but after just under a year on Ibrance and Letrozole with little to no side effect I am having a bit of a rough ride... My CA15 never gets monitored so can't help on that sadly... Take care

Thrifty51 profile image
Thrifty51

The reduction in the CA 15 is dramatic. That has to be a step in the right direction. I know nothing about the medication but I pray it is working as well as it appears to be. Good luck with the diet and maybe try high calorie food when she does eat like custard.

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