Could anyone give me some advice on weekly taxol IV? Any info experience would be so helpful thanks

[Nat1990]

Could anyone give me some advice on weekly taxol IV? Any info experience would be so helpful thanks

[nstonerocks]

Had good experience with taxol. No nausea. By end of course was starting to feel some neuropathy in hands and feet which mostly resolved. Two hours after infusion had loose poop (sorry, but you asked!). Hair fell out around 3rd infusion. Had to use neupogen to maintain white blood count. I drank green juice throughout and was able to complete the 12 or 13 infusions w good results. Good luck!

[Nat1990 in reply to nstonerocks]

Thank you so much for your reply did you have this when you were stage 4 or? Where are your nets located? Ibrance and letrozole didn’t work for my mum xxx

[nstonerocks in reply to Nat1990]

Mbc from the start. Lung Mets. Had taxol as first treatment. Some people report fatigue, but that wasn’t a problem for me. Good luck to Mum!

[BangorBelle56 in reply to nstonerocks]

What treatment are you on now nstonerocks?

[nstonerocks in reply to BangorBelle56]

Ibrance and faslodex

[BangorBelle56 in reply to nstonerocks]

Thanks. Ibrance and Arimidex didn't work for me so onc said I needed to change to Taxol. Also that there was no point trying it again after Taxol. Ibrance so convenient instead of going to hospital every week and not being able to go on holiday. Am changing to a hospital nearer to my home, as I have to go every week for 18 weeks. Am going to ask One there if he thinks I could try Ibrance again, perhaps with Letrozole.

[nstonerocks in reply to BangorBelle56]

Originally it was Ibrance and letrozole but had some progression so switched to faslodex with good results

[BangorBelle56 in reply to nstonerocks]

Thank snstonerocks. I was just wondering if the progression was worse in liver as that was my only progression

[nstonerocks in reply to BangorBelle56]

My Mets in lungs. But you should have good results too. 💕

[LeeannW710]

Hi.

I too did very well on taxol. I strongly believe it had to do with how much water I was drinking during my treatments. I feel like flushing that stuff out helps. I also started to see some hair growing again. Best of luck!

[mariootsi]

Had taxol with my first diagnosis back in 2013. Fatigue was an issue, given meds for nausea.

My hair fell out after 2 weeks and wbc tanked even with nuelasta shot. Now they have a patch like thing they put on your arm with nuelasta.

Fatigue was an issue for me along with loss of appetite. They perscribed remeron to help with appetite. It really worked. I also had some neuropathy in my feet but that went away after the treatment course.

Now I think they have most side effects covered.

If they offer it at your cancer center, you can even get cold cap, I think that's what it's called to prevent hair loss! Amazing!

You will do well I'm sure. Be sure to mention any and all side effects to your onc. Especially a fever.

[Hidden in reply to mariootsi]

I used the cold cap in 2014 and it works!

[beachlover65]

I also am doing well on Taxol. I have mets to bones and liver. I will go for my 19th infusion of taxol on Tuesday. The only awful side effect is neuropathy, and of course, hair loss. My CA 27-29 went down from around 900 to 55 on this treatment. I am happy about that!

[Nat1990 in reply to beachlover65]

How long does the actual infusion take? My mum starts it in the next couple of weeks she has to have a liver biopsy to see if the cell has changed.. I’m so happy taxol has worked for you 😊 how far spread are your liver and bone Mets? And how often do you get scans? Ibrance and letrozole didn’t work for my mum she only just had a small met on her spine and now she has around 4 or 5 small spots on liver so he’s stopped that and will be starting weekly taxol soon. Xx

[beachlover65]

Hi! The actual infusion takes 2 hours, including the pre-meds, for me. This may vary for your Mum depending on what their protocol actually is. For the first few infusions, I'd suggest someone go with her and sit with her through it. It is scary at the beginning, but she will get used to it and it will get easier. All the best! I'm sorry that you and she have to go through this.