Ned

[Ppppopp]

Hi Everyone,

I had a scan last week and got the results on Friday.

The lump in my breast is smaller and the activity in my lymph nodes as greatly decreased.

My oncologist was very pleased!

When I asked him when or if I would get NED he said it’s unlikely with my type of cancer ER+ hEr2-.

He said it shrinking and being stable is great and that it’s a slow cancer.

I wished I asked him more when I was with him, but you know how you analyze everything when you leave.

Anyone else heard this?

Best wishes,

Paulina

[Julie2233]

That's such good news! My oncologist says the same, stable and no progression is good news, but he's never mentioned NED.

[Ppppopp in reply to Julie2233]

Great! Phew. Thank you

[Maludagui]

What is NED? Sorry for asking

[Ppppopp in reply to Maludagui]

No evidence of disease.

[Maludagui in reply to Ppppopp]

Thank you.

[Ppppopp in reply to Maludagui]

No problem!!

[Barbteeth]

Fab news...celebrate!

Barb xx

[Ppppopp in reply to Barbteeth]

Thanks so much Barb!x

[Ppppopp]

Thank you!! Super! So glad to hear this. I’m so glad stable is good. I honestly thought we were working towards Ned, and was nervous.

Thanks so much for replying to me.x

[Evaf]

Hi,

That is wonderful news! Achieving NED at stage 4 (no matter your type of cancer) is difficult but no impossible. Some women here have achieved it. My friend with HER2+ ,which I believe is faster growing than HER2- , is currently NED. She had bilateral bc and extensive bone mets so I know it is possible! For how long that is another question...

All the best xx

[Ppppopp in reply to Evaf]

Thank you!

Yes I think it’s the her2+ you get Ned, but yes it’s more aggressive.

Can’t win.Xx

[Evaf in reply to Ppppopp]

I meant that you can get NED with HER- too! Xx

[Ppppopp in reply to Evaf]

Ah! Fingers crossed!!xx

[mariootsi]

So happy for you! Praying for continued good scans.

My onc is very happy with stable also.

[Ppppopp]

Great!! Thank you.x

[Red71]

I think your oncologist is being very careful. I am at NED but that only means that we can’t see the disease, not that it is gone. He probably doesn’t want to give you false hope that it is gone. I’m happy that the scan shows no NED because that means the drug combination works for me...for now! I had two lumps under my arm as well as bone mets. The lumps under my arm are gone. The bone mets show nothing. They will eventually trick their way around the Ibrance wall but the good thing is that it will probably take longer. I am happy for you that your scan looks better. That’s all we ask for each time we get scanned.