I let them know!

[Blondslovelife]

I just spent 45 minutes telling the pharmacy co. about my experience on Ibrance. I felt it was something I could do to help others with cancer and they needed to be told about the side effects. Plus it made me feel better!!!

[Onie54]

Our pharmacy here (Ontario,Ca) always asks each time I pickup my Ibrance. It’s good but sometimes they ask pretty personal questions! Which I would prefer to discuss with my family dr or oncologist.

But that’s just me ! 😊

[Blondslovelife in reply to Onie54]

The questions I answered were not personal. Just about when I started, tests I've had, side effects & what I take in dealing with the side effects.

[Klamato in reply to Blondslovelife]

What are your side effects from Ibrance?

[Blondslovelife in reply to Klamato]

The side effects started about 2 months after I started taking ibrance. Hair thinned in back, muscle aches, joint pain, lining of nose getting dry & causing it to bleed, insomnia and chemo brain fog. Also not as much energy.

[Hidden in reply to Blondslovelife]

That’s interesting about your nasal lining. I started Ibrance in late August. Since New Years I notice my nasal passages are dry. I assumed it is because of the cold, dry winter air where I live. What have you learned about that please?

[Southside25 in reply to Hidden]

I have the same problems with my nose; I usually do in winter. It might to worse with the Ibrance; I never thought about it since it's fairly normal for me. When I go to bed, a take a little vaseline on a q-tip and rub it inside my nose. I pinch my nose to get it spread around. You don't need to use a lot. It really seems to help. At least it feels much more comfortable.

[Klamato in reply to Hidden]

I have the drying nose also and itching like crazy!

[AmosF in reply to Blondslovelife]

Those sound exactly the same as what I am experiencing. Thanks for sharing. I really do think it helps to not feel alone out here in the MBC world. Take care. 💕

[Blondslovelife]

I first had my nose bleed in Aug. & the onc nurse thought it was because I had been in the air conditioning a lot, but then started happening again in October. I use a saline solution when it is bad. Also in Nov. I started taking an extra zinc tablet which has helped me. I never thought about using Vaseline. My nose doesn't itch though. I search the internet for ideas to my problems. Have a great Friday everyone!

[Tam-56]

I have dry sinus with nose bleeds for weeks then it subsided and now still dry but no bleeding. I use a nasal moisturizing spray that soothes dry nasal passages and increased fluids throughout the day. This has helped me! Now if only I could help my hair and dry skin!! 😢

[Blondslovelife]

Hi, biotin has helped my skin and hair. I started out taking 1000 mcg, which is one tablet, that was helpful but not enough so I've started taking two tablets, one morning and evening & that is taking care of the problem for now.

[Juliandrea in reply to Blondslovelife]

How long before you noticed a difference?

[Blondslovelife in reply to Juliandrea]

In about a week, my hair became softer also.

[Juliandrea]

Nice , that is quick . Is it falling out less? Mine is dry but still falling out when I comb it.

[Blondslovelife in reply to Juliandrea]

Yes, you may need to look into a different shampoo and conditioner. Take care.