Exercise and bone Mets

[equavel]

I was dx with stage 4 bone Mets in November 17

I gave up skiing and biking to avoid falls and the likely fracture

I started swimming 3-4 km per week

I walk less because of joint pain due to ibrance/letrozole

I have not gotten a straight answer on exercise,,,, what about stationary bike or other apparatus?

I have decided ti get a dog ( cavalier King Charles) which means I will have to walk... winter and INE might prove to be a challenge

My problem is that I am noticing s diminished range if November ... putting shoes on on R side can be s challenge... so can wiping my bottom

I have thought of consulting s Physio and acupuncturist,,,,, any suggestions would be appreciated

I am 74?and used to hiking walking cycling snd skiing snowshoeing

[Crazydentist]

Hello

I’m 64 with extensive bone mets diagnosed I April 2018..I have a vertebrae fracture in thoracic area..this is how the nets were discovered ..on Ibrance and letrazole

At my first appoint with the oncologist I asked if I could ride my horse ( I know I’m bonkers!).. she said it was ok as no spinal cord involved..I did ride the following day..only a plod though and it was too painful

I therefore stopped riding for a few months and took painkillers for the discomfort

I’ve started to ride more now but I bought an air vest which inflates if I part company with my horse as I’m scared of more fractured if I come off

I don’t want to be wrapped in cotton wool ..I do take strong meds if needed..been prescribed morphine but I use only as a last resort

I hate this disease and sometimes I just cry and get really down in the dumps..I’m crying writing this message!! But I’m not giving in yet doing what I enjoy

Get some good pain meds and go for lovely walks with your dog..animals are so therapeutic

Barb xx

[equavel in reply to Crazydentist]

Thanks

I appreciate your commentd

[Tja1970 in reply to Crazydentist]

I am sorry to hear you're in pain. I have liver and bone mets and so far have only experienced minor back pain, in the mornings. I walk and swim. I user to be a hard core gym rat. I just don't have the energy I use to. Maybe try to walk with your dogs. They are wonderful to keep your spirits up.

[Crazydentist]

Hi

It’s me again

Just reread your post..I’m actually going to have some acupuncture tomorrow so will let you know if it helps..I don’t fancy being pulled about by a Physio or a chiropractor..feel too delicate!!

Barb xx

[equavel in reply to Crazydentist]

Looking forward to your experience

[Teddielottie in reply to equavel]

I too believe in animal therapy as my two King Charles spaniels have got me through the last 10 months since I was first diagnosed . I walk 2 miles every morning with them and they keep me going . Mine will be 10 years old on 2nd September and still love their walks ! If you are considering a K.C. maybe look at rehoming an older one as a puppy could be a handful ( though adorable...!). I too have bone mets but am fortunate not to have any pain at present ... just a bit of stiffness when rising after sitting for a while ... think all my dog walking has helped me ! Hope the same for you and Barb with the horse therapy . Stay strong ! xx

[nstonerocks]

On vacation I had a few Yoga sessions with a yoga teacher who is certified to teach yoga for cancer patients. There is a good book about this by Tari Prinster that lists resources. If you cannot find a Y4C teacher, perhaps a gentle yoga and restorative yoga would work. Of course run this by your docs. I am not that physically active and that is one of my problems, but I can imagine how this inability to pursue your sports and horseback riding is one more thing this d@mn cancer has taken from you. I felt less hip pain after a few sessions of this. Perhaps it would work for you.

[RLN-overcomer]

Greetings: Sister/warrior See If your doctor can give you a referral for a good P.T. doctor , because once you've lost range of motion it takes a lot longer to get it back. After you finish therapy. ask your P.T. Dr. if Tai Chi, slow yoga, or using an adjustable Elliptical, or a glider would be okay for you to use. Swimming is also a great low impact way to work out, and also water exercises. Wowwwww active at 71. May Dr/ God bless you to have healing, and restoration in your body Amen. XoXoXoX

[Bishtown]

I am just in middle of first cycle of Ibrance, and my doctor told me to take glucosamine chondroitinn for joint pain. I take two a day...think it helps some.

[13plus]

Hi aquavel!

You are an inspiration doing all that at your age. I'm a Pilates and personal trainer with MBC in several places. I still actively teach! I can understand the biking (I haven't been on mine since dx) but I imagine snow shoeing might be fine (never done it so don't know about falling etc). Swimming of course is excellent but so is walking. Ask about taking tumeric for joint pain . It helps but check if you're allowed to take it.

Also anything like elliptical and stationary bike is absolutely fine!

Best other advice otherwise is tai chi (do it! No danger there) and good certified Yoga for cancer teacher or therapeutic yoga (ask of their experience with bone mets).

Good luck and keep moving! Yoga will help with flexibility with the right teacher just don't allow anyone to actively push you into a stretch or force yourself into a deep stretch either, and you should be fine.

[equavel in reply to 13plus]

Thank you

You have no idea how difficult it is to get hold of that info

[nstonerocks in reply to equavel]

Tari Prinsters book is on Amazon. Check it out

[13plus]

Oh I know, that's because it's not their area of knowledge. I had a partial compression fracture that had me in tremendous pain for a while but I pretty much got myself back pain free, with some help towards the end of he walking when I finally started the cancer drugs.

At first my docs would not believe I was ok and thought I was faking it to avoid radiation! Lol, pretty hard to fake "no pain and I can bend over again reasobalnly close to how I use to do it. " I digress. I was close to going to a particular PT at Kessler but by that time I had figured out what was safe to do and what to really avoid. There was no assurance either that he would actually know. It was more like, see what he says.

And they can't go by scans alone for advice, one needs to look at the whole picture of a live body. Every body is different . Just like I had a healthy client with a shoulder that looked horrible in scans but it was almost fully functional . So she did not need surgery (as one advised) to fix what appeared on scans to be really wrecked. She is fine! She knows what she can't do.