Extreme survivors!

[Snowcone16]

cancerletter.com/articles/2...

Great article for inspiration!

[Wintervt]

Thank you for the inspiring article!

[RomanChariot]

Thank you, Snowcone, I needed some inspiration today. My petscan did not turn out so well on Monday. I am now off Ibrance and Faslodex, awaiting a first appointment in July at the Moffitt in Florida. We are in the midst of moving from Maryland to Sarasota. Lots of change...plus the sad news about progression. My doctor here suggests starting on Paclitaxel (Taxol). I've never heard of it, but from the discription page, it's stronger. We'll see....

[Snowcone16 in reply to RomanChariot]

I’m glad it could help. I need to immerse myself with positive stories of strength and healing. It was reassuring that there were 30-40 year survivors that had recurrences; are living long lives WITH evidence of disease. As well, that it’s bevoming a big enough group that they are seeking 1,000 participants...while I wish they identified one key thing that they had in common (so far), it was also reassuring that it could be different things too. Finally, I’m also reassured they are studying MBC and this means more alternatives and hope for a cure. I don’t have experience with the med that you mentioned but have heard of it. ❤️

[Sweeten_1 in reply to RomanChariot]

When ibrance and faslodex stopped working the doctor at upmc started me on xeloda. Doing better after 3 months. No lower intestine pain and even some bone mets disappeared

[RomanChariot in reply to Sweeten_1]

I will mention Xeloda to my new doctor when I get to Florida. Thank you, Sweeten!

[kit5 in reply to RomanChariot]

ibrance/faslodex did not work for me...then i did a targeted trial at dana farber (in boston, so i commuted monthly for a good 8 months) now on xeloda which seems to be a miracle drug! don't despair...cancer's job is to outsmart the meds and reinvent itself. your job is to keep trying stuff to smack it down! they have lots of stuff to throw at it. just keep living your live and focusing on the good. easier said than done, but you gotta do it!

[RomanChariot in reply to kit5]

Thanks, kit5, for the support and confirmation! it's a real roller coaster...just realizing the meaning of that and how important it is to stay calm. Thak God I started meditation in 2013 with first diagnosis, or I'd be taking meds.

[MissyAnn68]

I have lived with bc since 1999 and mbc since 2013. I have no idea why i go in and out of recurrences.

Last year was hard; lung met was active again, Ibrance, neutropenia, pneumonia, hospital stay, Kisqali, chronic fatigue, thinning hair, etc...this year; no evidence of metastatic disease and i am back to only the side effects of Femara (Letrozole) which is joint aches and pains. I dont want this year to end!

Thank you for posting the article! I need to hear longer stories than mine

[Snowcone16 in reply to MissyAnn68]

You’re an inspiration! Thank you!

[Joan37]

Thanks for posting this. It is inspirational! I took the survey. They also asked whether I am part of the MBC Project, which I am. I recently received a blood kit from MBC Project, after having given my salvia about 2 years ago. I've been living with MBC since Jan. 2007 and have been NED since Oct. 2008. I had mets to the lung and brain.

[Snowcone16 in reply to Joan37]

Awesome!! Thank you!

[RomanChariot in reply to Joan37]

Wow, that's fantastic, Joan! I will look into helping with the MBC Project and taking the survey. Thank you for your contributions.

[Nikita1806 in reply to Joan37]

Will you be able to share what treatment you had?

My mom is having triple postive metastatic breast cancer on lungs and liver. And i am looking for any kind of hope.

[Snowcone16 in reply to Nikita1806]

I’m current taking folsadex, xgeva, Ibrance and letrozole although I’m

Her2-

[SeattleMom]

Thanks for sharing, Snowcone. HOPE! HOPE! HOPE! XO Linda