Xeloda need help if anyone take it

[gosia54]

Hi I need somebody to help me my Dr change my meds again and this time for xeloda anyone on the drugs please let me know

[Sheung]

My friend has been on Xeloda for 6 months now. It is oral chemo which is far less side effect than chemo injection. The side effect is more on skin. Make sure you put enough moisturizer. Sun block is important as the skin gets thinner and easy to develop dark spots on face.

She is doing well with Xeloda that the tumors in her liver got smaller in the recent CT.

God bless you.

[Dartyus in reply to Sheung]

I am on xeloda. Have been on since January 2017. My doctor pleased with my progress. I have had few side effects. Hair growth is slower..i was told I would have bowel issues did not get any. I may be tried. Have very little fatigue. Because I am a person of color my hands and feet on inside turned dark. They are puffy but I don t have any pain. I have noticed some light spots on my face. My doctor said it could be from the medication. But because it may have to do with my immune system they won't give me any mediation. Because any mediation would suppress my immune system.

[NCDS in reply to Dartyus]

Glad to hear seeing progress with few side effects! Just started, my prayers!

[Mimidonna]

My mom took xeloda for 2 years. She felt pretty good on it. No terrible side effects. She did have to use lots of moisturizer on her feet though. The main side effect for her was the redness of hands and feet. Hope you do well on it.

[tessibop2002]

I have been on it since June (thats when Ibrance and faslodex stopped working) for my Breast cancer stage 4, I dont think the side effects are too bad, mainly a little stomach upset and diarrhea, but other then that i find it easier to take then Ibrance I was nauseous all the time on Ibrance, my numbers went way down since i been on Xeloda and i go for my next PET scan in October hoping for my cancer to be at least stable again, Oh i hear the most common symptom is the hand and foot thing, so far i haven't experienced that, then again im on a lower dose, I take 2 in the morning and 3 at night (500mgs tabs) so thats a total of 2,500 mgs a day, one week on, one week off. Good luck! You can go on chemocare.com and look up side effects, my oncoligist told me thats the site they use and its the most reliable site.

[Epinto in reply to tessibop2002]

Hope things go well for u. I am on Ibrance and faslodex. Just wondering how long u were on it before it stopped working. Please share, thanks.

[jstickrod in reply to Epinto]

I, also, am on Ibrance and Faslodex. Just started this month. After two weeks, my white blood count is dangerously low. They are asking me to avoid crowds and sick people. I am also curious how long you were on these drugs until they became ineffective, and how did they determine that? Scans?

[tessibop2002 in reply to jstickrod]

9 months, i didnt have the problem with the white blood cells, my oncologist said that that was what is the most common on Ibrance, well all chemo make your white blood cells low, but dangerously low is a different story, did he lower your dosage?

[tessibop2002 in reply to jstickrod]

they determined it when my cea numbers kept going up and they sent me for scan and found it spread to ovaries, so they took them out and put me on Xeloda

[tessibop2002 in reply to Epinto]

after 9 months my numbers started climbing, so they sent me for a scan, the cancer had spread to my ovaries so i had them removed, but ive heard most say it works for about a year and one who said she had been on it for two years so you never know, best of luck to ya

[CichockiS]

Hello

I've been on xeloda for 3 months. My tumor markers started at 400 now down to 147. It's an incredible drug. My side effects are tiredness towards the end of my week on the med and some bottom of my feet soreness. It is working amazing and I hope it works just as well for you. 3 pills morning , 3 pills evening.

I am stage 4 with mets to almost all of my bones and lympnodes. Good luck !

[NCDS in reply to CichockiS]

Thanks for sharing, gives me hope! Thanks and prayers!

[03Amegios]

I too have been on this drug since January! It is working great with my cancer. My mouth stays sore a lot and the tips of my fingers. Dr gave me some meds for my mouth and I use udderly smooth lotion for my hands

[Pammy420 in reply to 03Amegios]

For mouth sores have dentist prescribe magic mouthwash

[Tja1970]

I have been taking it for almost a year and I have HORRIBLE mouth sores. That and the skin dryness and tiredness have been the worst side effects for me. I have the Y90 surgery in October of last year and that along with the Xeloda and Fasledex shots and I had NED on my last scan. I have State 4 Mets to the liver and have another scan next week, fingers crossed that it's still going well.

[lweaver in reply to Tja1970]

You may want to look into eating chia seed. It is known to help with mucous membrane health. I eat it daily which may have prevented problems for me while doing chemo in 2009 and now on Ibrance.

[Cowgirl2]

I have been on Tykerb and Xeloda since October 2016. I have done extremely well. My doctor has me on the lowest possible dose so I don't have the side effects that many people do. I do have a little fatigue, but the main thing is that my feet are EXTREMELY dry.. I use a really good lotion on and wear socks to bed. That helps a lot. I don't go barefoot, even in the house. I hope that it works great for you to

[Hidden]

I have been on Xeloda for 11 months after Letrozole failed. I would stay on it forever if I could - I take 500mg 2 morning 3 evening, 2 weeks on and one off. (started on 2 am and 2 pm for 2 cycles to accustom me to it first). Hand/foot syndrome started about 6 months in Although I try to keep loads of lanolin on my hands - it is difficult with daily round of gardening, cleaning etc - I have a bit of numbness at fingertips and some dryness and light peeling along the skin between forefingers and thumbs. It is as if my skin got a bit thick! No pain, no other discomfort really apart from occasional light-headedness and slight upper chest tightness as week 2 comes to an end - both wear off in a day or two. Liver met has shrunk - hope the CT scan yesterday continues to show this and no new mets.

Good luck

[Kiera49 in reply to Hidden]

How long did it take you to have shrinkage I've just started 3rd cycle xeloda