Shoulder pain after breast cancer surgery, radiation or reconstruction

[bikebabe]

I'm participating in some work around improving support for managing shoulder pain after breast cancer surgery/ radiation or reconstruction. I'm keen to listen to your experience of shoulder pain, what worked well, what support you got for it and if you still have it. I can be privately messaged if you prefer.

[Iamagardener]

I strongly recommend this YouTube channel youtube.com/channel/UCw2-4c...

Jen is wonderful and covers many many aspects of BC recovery. I learned a lot from watching these videos, as my BC was diagnosed at the start of covid so not many in person visits, mostly telehealth for about 2 years. Jen has also started a Facebook page; I am a member there and it's a good place for discussion/sharing of experiences facebook.com/groups/breastc... She has been doing weekly half hour presentations for free; there is going to be a nominal cost starting in November but you only pay if it is a topic you want to watch. Most of this is covered in her YouTube presentations. Meryl

[bikebabe in reply to Iamagardener]

thank you for the link Meryl. Regards and best wishes

[BellaMillie]

Dear bikebabe,

Sttrange you should mention shoulderpain.

After my surgery to remove the cancerous lump in my left breast in June this year I started to get a nagging pain in my left shoulder which got worse as time went by. Plus also a sharp pain under my left breast. I had a PET scan done in September and got the news that the cancer had spread into my lymphnodes and into my bones . Several spots in my spine, in my left shoulder and in some ribs. They acredited the pain in my left shoulder to that and told me that I also had 4 fractured ribs, one of which was under my left breast. I have been on IBRANCE since early October. (I started Lestorol in Agust)

Since two days the pain in my shoulder has become much less, so much so that I have not taken any ibuprofen or naproxen for the last 2 nights, (ssubscribed by my oncologist) when the pain was the worst. During the day I hardly felt pain maybe because I try to keep busy ,but it always seemed to get worse at night.

I am now wondering if the IBRANCE palbociclib , 125mg , has caused that pain to become much less? I hope it continues so!