I am a 39 year old male who has been suffering from RLS since his early teens. This disease was left undiagnosed for most of my life, finally being diagnosed in my early 30's. However, after waiting what seemed a lifetime to see a Neurologist, he diagnosed Acute RLS *It affects all my limbs acutely and is present 24/7*. I was sent to recieve Electromyography which following diagnosed that i had Sensory Neurpathy, which was the cause for my RLS.
Now i find myself taking medication that would normally be perscribed to a person with severe parkinsons, yet it barely helps control the symptoms. I spend every waking moment of my life in extreme discomfort and pain. The symptoms in my legs are escalating so quickly that walking more than 100 yards is impossible.
Now Im not writing this to get sympathy. I accept what ive got and whilst it can be frustrating and painful, Im managing to live with it. However, my greatest problem is trying to get information from the doctors and specialists. I simply want to know what the future holds for me me as this disease is degenerative and will get worse. I get no answers and am left to walk into my future blindly.
I am genuinely hoping people within this group may have Sensory Neuropathy and will be able to share the experiences with this disease.
Thank you for taking the time to read this. Regards!