RLS and small fiber neuropathy

[Dana0612]

Does anyone else suffer not only from RLS but also small fiber neuropathy? What have you found that helps? And have you found that the neuropathy has affected nerves in arms? I'm about at my wit's end with this! I am currently taking 600mg, four times a day.

[martino]

Yes I do. I am not affected in the arms and thankfully only in the legs up to my hips. Gabapentin helps me. Pain wakes me and after taking 900mg I find the pain eases after 30 mins. I use a 2 mg Neupro patch and have 200mg of Tramulief. My total Gabapentin is 2700.

[Eryl]

Possibly both caused by high blood sugar. At high levels it causes neuropathy, at lower levels it causes inflammation in the nerve endings, which shows itself as the itchy sensation in the joints. I've managed to eliminate my rls by rigorous dieting. I suffered a bit last night because I'd done a 40 mile bike ride, and imagining that the exercise had used up a lot of blood sugar, I had a large slice of chocolate cake at the café stop. How wrong I was!

[2everett in reply to Eryl]

Hi Eryl

I loved your post. 😀

[2islandboy in reply to Eryl]

Eryl --- Trwyn Du, Fl W 5s Nice!

I'm with you on the high blood sugar - but I think I saw a blog about chocolate curing all ills! Really, we are what we eat - scary! I also bike heavily and sometimes the night after is terrible, not so much the RLS, but something weird in my arms and chest. It's like I have aliens in my chest and I try to bash them down with my arms???

Never heard of "small fiber neuropathy", will research.

I tried the sleep hypnosis posted by 2everett yesterday and kind of like lost touch with my feet and legs. It really did work. Could this affect what you describe?

from 2everett: youtube.com/watch?v=WAbxOCy...(Not working as expected?)

[Eryl in reply to 2islandboy]

Cyfarchion o'r hen wlâd. I did a fast 25 mile ride on Thursday evening but had no problems, but I did not have a café stop. These ideas that this and that are good for you are a marketing scam. There may be one chemical in pure cacao that's good for us, but the chocolate we eat has so much sugar in it that the good is far outweighed by the bad.

[2islandboy in reply to Eryl]

Cyfaill o'r Hen Wlad yn America. Just had my DNA done and it seems I'm a bit Welsh!

I have tried cacao beans, freshly sun-dried in Africa. Certainly, no sugar added there!

I remember well, the "Sugar Blues" 1975, by William Dufty. If only we had listened to his wise counsel.

[Dana0612 in reply to 2islandboy]

So far, the only thing that has been going is that my B12 was a little low so I'm now taking a supplement. They took 20 viles of bloodwork. From what I have read, my hypothyroid can play a part in neurpathy.

[2everett]

Hi

May I suggest you research the Vagus Nerve on You Tube. Explore what its function and how to heal it. When you have done that I suggest a gut friendly diet, walking outdoors and guided meditation. It appears to be working for me. Yesterday I posted that I’m beginning to believe that RLS might be my ‘friend’ warning me to make lifestyle changes before something drastic happens. Scary but worth considering.

I can look back on my life and remember when my RLS was at its worst and what was happening in my life at the time. In my case there’s a definite link. I also binged on alcohol once a week thinking it made me feel better. Looking back I was overloading on sugar. As I came home in the back of the taxi I would be punching my legs to try and stop them from jerking around. I feel I still have the RLS because I’ve suppressed many negative things that have happened over the years.

Please look at 2island boys post from yesterday and read about how suppressed rage affects our health. He suggests reading The Divided Mind by John E. Sarno M.D. I’ve ordered two of his books for total £16 or 20$ ish.

I don’t think there will be a cure for me until I’ve dealt with my demons. I feel that all of the above helps me cope/manage it better but it won’t cure it.

Good luck finding something that works for you.

[Eryl]

I've had conversations about heath with two separate people recently where we agreed that we don't appreciate our health enough until it's too late.

[Bajatom]

Several studies show relief from neuropathy in days with this non-drug treatment. Worth a month's try with various forms of the ailment.

nutritionfacts.org/video/cu...

[Neverache]

I have RLS and SFN. I’ve also had multiple spine fusions. My neurologist and neurosurgeon say they compound each other and heighten intensity of pain. I use Aloha Lipoic Acid for SFN. Lyrica helped but I had to go off because of side effects. I am overwhelmed with four neurological disorders and a failed cervical fusion. I have RLS 23 hours a day (if I am lucky). I am losing my mind to the torture of RLS and all my pain syndromes so today I started a pain pump trial. Another thing that helps my pain is intranasal Ketamine but that is hard to get from doctors because they don’t know much about it.