I'm going into a bit of a rant here, but some of you might see some sense in it. If you do and your GP is interested in your RLS problem then maybe you could take this to them :-
I've only been a victim of RLS for two years; it appeared after I came off treatment for an enlarged Prostate. That medication was TAMSULOSIN which has allegedly a narrow window of effect on the vascular system of the urinary tract. Medication was taken early evening and side effects were HEADACHES, NASAL COGESTION and a WOBBLY HEART BEAT. So obviously the Tamsulosin didn't have the specific effect stated; my Cardio-Vascular system was taking a bit of a beating.
It was several days after surgery and coming off Tamsulosin, that my first RLS symptoms appeared and several truly miserable months later that I was prescribed Ropinarole. Ropinarole's side effects for me are HEADACHES, NASAL CONGESTION and a WOBBLY HEART BEAT.
It's taken some time for me to manage my medication properly, but I have a reasonable lifestyle. Along the way though, I have made the following observations, some of which you will be familiar with:-
In general my RLS appears when I try to relax EXERCISE STALLS THE ONSET. IN POINT OF FACT, TWO DAYS OF ARDUOUS LABOURING SAW ME REQUIRE NO MEDICATION AT ALL.
It is regularly preceded by pin-prick sensations IN THE EXTREMITIES OF THE CARDIO-VASCULAR SYSTEM - FEET AND HANDS.
COMPRESSION STOCKINGS HELP; AGAIN AFFECTING THE CARDIO-VASCULAR SYSTEM.
HOT SHOWERS HELP, AGAIN REQUIRING THE HEART TO PUMP EXTRA BLOOD TO THE AREAS AFFECTED BY THE HOT WATER.
TIME SPENT IN HOT SUNSHINE(PARTICULARLY INTO THE EVENING)DELAYS THE ONSET OF THE SYMPTOMS DESPITE MY LYING IN A DECK CHAIR TOTALLY RELAXED.
The foregoing to me suggests that MY RLS is driven by a varying blood supply to my muscles, not a neurological condition and that Ropinerole replicates Tamsulosin in opening up the blood vessels. My GP who retired recently had little interest in my RLS, but her replacement shows considerably more sympathy and is keen to follow up on my observations.
I will certainly keep you posted, but if you see anything relevant to your situation in this,then please take it to your GP.