Well done Sue: Just wanted to add my... - Restless Legs Syn...

Restless Legs Syndrome

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Well done Sue

Woolfy1 profile image
4 Replies

Just wanted to add my congratulations to you for going on tv and telling your, and many of us' , story. Dr Spinks was great too..

Thanks to everyone who is trying to get the subject 'out there'.

Still some work to do, just been offered a DA by GP yesterday!

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Woolfy1
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MrCrow profile image
MrCrow

Link?

Woolfy1 profile image
Woolfy1 in reply toMrCrow

I can't seem to manage to send the link but if you look at Snoops112233 (Sue)'s feed, you will see the you tube video of the interview

Joolsg profile image
Joolsg

How disappointing. I hope you showed him the new NICE cks guidance which makes it clear dopamine agonists should NOT be prescribed in the UK because of the very high rates of Augmentation and Impulse Control Disorder?

Woolfy1 profile image
Woolfy1

I told her as it was over the phone. She clearly didnt know and hadn't read my notes, as I have been on ropinirole in the past. Thats when I suggested a swap from gabapentin to pregablin, which she has organised. The pharmacist at the practise seems a bit better informed. Also gave me codeine to help with the transition. I guess its small steps, but very exhausting to have to fight each time I go to the GP

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