Does anyone in Nottingham use the Buprenorphine patch for their RLS

[Monamiem]

Hello,

We are thinking about moving to Nottingham and was wondering whether anyone is currently prescribed the Buprenorphine (Patch)?

My husband has been prescribed the patch by his GP (after a lot of convincing and stress), but we don't want to move and then be back at square one with a new GP who refuses to prescribe it.

It's classed as "Amber 3 - Primary care/ non specialist may initiate as per APC guideline", but like many other counties, Buprenorphine isn't licensed for RLS.

We currently live an hour away in Derbyshire, but our GP has a notice about not letting people stay on as an out of area patient.

I really wish the UK wasn't such a gamble with healthcare, and especially with RLS.

Any advice or recommendations would be great, thanks!

[SueJohnson]

You might message Biscuitface who took buprenorphine and lives in Nottinghamshire or he might respond to your post.

[Monamiem in reply to SueJohnson]

Thank you ill send them a message if they don't see this thread

[Biscuitface in reply to Monamiem]

Here I am. I was on a patch but for 2 years I have been prescribed Buprenorphine sub lingual. I take 4 x 200 mcg daily. Mine was prescribed by my Neurologist who is in London. Professor Walker. My Gp was reluctant to prescribe without a Neurologist initially.

[Cookiebum24]

Hi, I’m in Derby and have the patch but I had to go to a private neurologist first who then recommended it.

My GP was too afraid to prescribe them alone yet was happy to have me on a dopamine for 20 years and a ridiculously high dose of Gabapentin!!!

I wanted the sublingual tablets but my GP can’t prescribe them as they are only licensed for use of drug and alcohol dependents!!

It’s taken me 6 months to finally get Buprenorphine patches.

Good luck 🤞

[Happykaz]

I live in Nottingham and I have both been prescribed the buprenorphine patch and buprenorphine sublingual tablets. I am currently using the sublingual tablets.

I was originally prescribed DAs by my neurologist but eventually suffered augmentation . I have an excellent doctor who was willing to listen to me and having come off DAs I tried Gabapentin and Pregabalin They didn’t work so she was happy to prescribe buprenorphine. However she had to get the go ahead from my neurologist first.

I don’t think that some of the other doctors at my surgery would have so readily agreed to recommending it though! The good thing is they are allowed to prescribe it if they want to.

Let me know if you have any other questions.

[SueJohnson in reply to Happykaz]

I keep a list of doctors who are willing to prescribe buprenorphine so it would be great if you could tell me who your doctor is.

[Happykaz in reply to SueJohnson]

Morning. My doctor’s name is Kate Hodson at the Valley Surgery, Chilwell, Nottingham.

[SueJohnson in reply to Happykaz]

Thank you.