help plz : don’t know if anyone can... - Restless Legs Syn...

Restless Legs Syndrome

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help plz

Ciciskinner profile image
5 Replies

don’t know if anyone can help I have had no relief for 14 days no matter what all my test are normal I’ve had ct scans and everything nothing is supposably off but my whole body is feeling this crazy pain tingling sensation now and it’s completely unbearable 😭 I’m in the brink of suicide because I’m seeing no relief . Gabapentin nor Percocet have helped I’ve always tried smoking baths stretches I mean any darn thing you can think of 😭

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Ciciskinner profile image
Ciciskinner
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ChrisColumbus profile image
ChrisColumbus

I am very sorry to hear of your distress, but please refer back to the replies to your first post from Joolsg and SueJohnson . IF what you're suffering is RLS you probably need to take more gabapentin and for longer as per their guidance.

Sue also suggested that you might ask your doctor for a temporary low dose opioid. If you anticipate that your doctor may be reluctant to prescribe this, read the following and show it to them:

healthunlocked.com/rlsuk/po...

Very best wishes

Ciciskinner profile image
Ciciskinner in reply to ChrisColumbus

if it’s not rls what do you think it could be ?any ideas ?

ChrisColumbus profile image
ChrisColumbus in reply to Ciciskinner

Sue and Jools both know much more about RLS and other conditions than I do and both were doubtful that you had RLS: Jools suggested fibromyalgia, pointed out that this was fairly common after Covid, and advised that if it was fibromyalgia that again you'd need more gabapentin for longer. Have you increased your dose? (I've got to go out now for the evening: I hope that someone else comes along with more help, but Jools and Sue's advice is the best you can get on RLS so please re-read their previous replies)

Joolsg profile image
Joolsg

Are you taking any other meds besides gabapentin?It definitely doesn't sound like RLS.

Have you tried medical cannabis? I know many people with fibromyalgia, and it really helps their pain.

Joolsg profile image
Joolsg

There is a separate Fibromyalgia group on Health Unlocked.I'm sure that if you post your experience on there, you'll find lots of people with Long Covid pain.

They may have better advice for you.

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