TIKTOK waking ‘em up !

[Shumbah]

Waking up the world because we ARE !!!

Cracking this thing wide open with every breath in my body .

Sorry 1 hour sleep last night - this is a screen shot of a video I have posted this morning in my dressing gown .

I was just trying to let you know that the stories I am posting on RLS_stories Instagram are also on TIkTok .

This is a screen shot of the video I did on how much sleep rls people don’t get and that we are allowed to jump in a car and drive .

And let me tell you I’m still going no daytime rest and my oath it has shown in everything I have done today mucked up so many emails .

To see the video go to one of those 2 platforms it won’t let me post videos on here.

[DicCarlson]

Can't see or read any of that post!

[smilingjane]

Shumbah, I don't undetstand this post?

[Shumbah in reply to smilingjane]

It’s to let you know I am now raising awareness on TikTok

Also on Rls_stories on Instagram

Im also working on challenge to raise awareness.

Hopefully go viral, I have meetings the rest of the week with some young peeps to talk about my ideas and get them on board .

Sorry if things don’t make sense Im really unwell going in for a second surgery next week( ( infection in my jaw)

Apologies

[smilingjane in reply to Shumbah]

Oh dear, so sorry, sounds like you are having a hard time. And still raising awareness out there.If I was your doctor which thankfully I'm not, I would be wishing you to rest.

I hope the surgery goes well and that your infection subsides quickly.

All the very best

Jane x

[SueJohnson in reply to Shumbah]

You may already know this but in case you don't: Tell your doctors and anesthesiologists about your RLS and its symptoms and that you need your medicine and ask if there will be any drug interactions from what they will give you. Also talk with the patient representative ahead of time. Tell them not to give you any sedating antihistamines or sedating anti-nausea medications. Instead insist they use Zofran (ondansetron) for anti-nausea. You can download the Medical Alert Card that you can show your doctors, that tells them about the condition and what will happen after surgery and what medicines to avoid at rlshelp.org/ although you will need to join the RLS foundation. An international membership is $40, but they have some good information on it and you get their monthly magazine. However the safe antidepressants listed on medical alert card are not antidepressants: Lamotrigine, Carbamazepine, Oxcarbazepine. Also there is a 2 page handout "Surgery and RLS: Patient Guide" on the RLS Foundation website which is very helpful. Also "Hospitalization Checklist for the Patient with RLS"

[bedith6]

l hope you will soon be well again Shumba. You do so much to help people with this horrible condition. Bless you