I’m confused…

[Bramble2000]

Hi, I’m confused about something. Did the Oramorph I’ve taken for years cause my RLS or is it keeping it from being way worse? I also used Buprenorphine patches for a while for another condition but it didn’t help the RLS. Thanks.

[SueJohnson]

It certainly wouldn't cause RLS and yes it is probably helping your symptoms.

[Bramble2000 in reply to SueJohnson]

I thought opioids could cause RLS?

[Hectorsmum2 in reply to Bramble2000]

They are a treatment for RLS. A lot of drugs have a rebound effect when they are stopped causing symptoms to be much worse for a while. Not sure if this applies to opiates and RLS.

[Bramble2000 in reply to Hectorsmum2]

That makes sense for me actually. My theory is that the oramorph keeps the RLS at bay - mostly, but whenever I stop taking it, my RL become severe. Not sure what the answer is going forward’s other than to keep taking the oramorph.

[Hectorsmum2 in reply to Bramble2000]

as long as you arnt needing to take more to get the same relief it should be fine to just keep taking.

[LotteM in reply to Bramble2000]

Indeed, stopping an opiate like oramorph can and usually will cause rls-like symptoms. Temporarily. You can only find out by sitting, no walking them out. As oramorph doesn't have a very long half life, it could be over in several days. But if you have underlying (idiopathic) RLS, the symptoms will persist and you may need other means to treat them. Incidentally: have you had your iron status checked according to the advice in the Mayo Clinic algorithm

[Bramble2000 in reply to LotteM]

Yes, iron ok. Thanks

[Eryl]

Both are treatments that supress the symptoms of RLS, they do not address the cause (diet) so as your metabolism changes with age the effects of causes get more severe.

[Bramble2000 in reply to Eryl]

I thought it was neurological? If it’s as Simple as a diet issue, why do people suffer so much to the point of suicide? Metabolism isn’t the same as diet.

[Eryl in reply to Bramble2000]

The diet causes systemic inflammation which affects the nerves and makes them hypersensitive leading to RLS. Most peole believe that RLS is a disease with no cure rather than a syndrome with causes. Metabolism affects how the body absorbs foods and how it consumes or stores the components.

[Eryl in reply to Bramble2000]

youtu.be/7lPxw6hOKO4?si=Ia8...(Not working as expected?)