RLS during heatwave

[Bookseller]

During this extreme heat, does anybody else find RLS worse ? I’m on Rotigotine patches which get changed in the morning & Pregablin twice a day RLS bad all night ! But I am watching vintage movies online all night !

[Joolsg]

Is your RLS only bad all night in the heat or is it always bad? If so, you need to consider why. If you're on Rotigitone ( and pregabalin) it should completely control RLS. If not, it's likely to be augmentation causing the bad nights.Link attached.

rls-uk.org/augmentation-reb...

[Bookseller in reply to Joolsg]

Thank you for that. I read the youtube link and another after that, and think I am on the best stuff that is around right now. It's just the heatwave.... And I thank you sincerely for your trouble in replying I don't think it is augmentation.... yet... Grrr.

[Joolsg in reply to Bookseller]

Glad to hear it. Never increase the dose if it stops working. Then it would be time to switch meds.Hope the RLS settles. This heatwave is brutal in London.

Portable air conditioning unit has been my life saver at night. Best money I ever spent!

[Frustrated-RLS]

My RLS, which is generally controlled by Gabapentin, is definitely kicking up during this heat wave.

[SueJohnson in reply to Frustrated-RLS]

Dr Buchfuhrer says that if it gets worse during heat, you could try temporarily taking more gabapentin.

[Bookseller in reply to SueJohnson]

Thank you Sue

[SueJohnson in reply to Bookseller]

How much gabapentin are you taking? Are you taking it in divided doses of no more than 600 mg 2 hours apart?

[Frustrated-RLS in reply to SueJohnson]

1200 now and yes split into two 600s

[Frustrated-RLS in reply to SueJohnson]

Yes, thank you. I am going to do this since this heat wave isn’t going anywhere anytime soon!

[SueJohnson in reply to Frustrated-RLS]

How much gabapentin are you taking? Are you taking it in divided doses of no more than 600 mg 2 hours apart?

[Hidden]

I don't find the heat affects my symptoms. And i live in an incredibly hot city.

[Frustrated-RLS in reply to Hidden]

Do you have air conditioning in your house/bedroom? In England most of us don’t, and that means during heat waves we’re trying to sleep in very hot bedrooms at night. That’s the issue for me. Or, perhaps heat is just not a trigger for you at all, which is great.

[Bookseller in reply to Frustrated-RLS]

aaarrgh no air con and no likelihood. I do thank you for reply and interest.Do you think, that if we went to France or somewhere hot at night, the air con would negate the onslaught of RLS at night, as I would love to go see nephew in his house in Grasse. Which is hot. But he has air con.

[Hidden in reply to Frustrated-RLS]

Yes but only really turn it on when it's consistently over 35 degrees Celsius. Mind you, I'm probably acclimatised to the heat. All the best in managing the heatwave. ..A cold shower immediately before bed could help...or a couple of ice packs in the sheets.

[rlsagain]

Yep! I had a really bad night last night - up for several hours, pacing up and down, etc. As 900mg gabapentin has been working pretty well for me for a while now, I’m sure it’s the heat (and probably the ice cream I had during the afternoon 😩). Fortunately heatwaves in the UK rarely last for long…