Hidden7 years ago

How long have you been having RLS symptoms in the day. It could be you are starting to have augmentation. The Pramipexole can make things worse rather than better. The new recommended dose for Pramipexole is no more than 2 pills of the 0.088mg.

Tease-ah7 years ago

Thanks Elisse. I always have RLS during the day but as I am active it doesn't bother me as much. It is just that when I go on holiday or when I am sick and not move my legs that the problem starts so I was wondering if there is something I can take for those moments. Pramipexole works perfect for me, I started on 2 pills of 0.088mg but that did not keep my legs calm at night, it's only since I am taking 5 of them that I can finally sleep at night.

Helen1737 years ago

Did this medication ever stop you sleeping? Took my first one last night and didnt sleep at all!!!!! Wide awake ALL night 😞😞😞💤💤💤

Im too scared to take another one tonight incase the same thing happens again.

Tease-ah7 years ago

Hi Helen, I sleep like a baby since I am on Pramipexole. I just did a Google search and it says when they give you insomnia to tell your doctor, maybe these are not suitable for you. Hope there is another medication that can help you. Have you tried Tramadol?

Helen173 in reply to Tease-ah7 years ago

Ive just got ropinirole today to try. Hopefully not the same side effects as pramipexole! Thanx for the reply.

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Tease-ah in reply to Helen1737 years ago

Oh that is great Helen, please let me know how it goes with the new meds.

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Helen173 in reply to Tease-ah7 years ago

I will thanx

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Helen1737 years ago

So ropinirole were rubbish too!!!! Ended up back at the doctors again who said i must be very sensitive to the ingredients in these meds 😞

Ended up with very strong co codimol to see how they go! Fingers crossed its 3rd time lucky!!! 😉

Tease-ah7 years ago

Oh Hope Cocodimol helps for you, for me it was no good as I couldn't go to the toilet for days

KaarinaAdministrator7 years ago

Hello Tease-ah and Helen, unfortunately constipation is one of the side effects that most people suffer from when taking cocodamols.

Let's hope this is not a problem for you Helen if they give your some sleep.

Kaarina

Helen173 in reply to Kaarina7 years ago

Oh great! Something else to look forward to! 😉

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Tapir3 years ago

What you describe sounds exactly like augmentation, the same thing happened to me at the 2x0.088mg dose of Pramipexole. I fear the side affects of most of the drugs offered for RLS.

I think if we suffer from RLS it is probably with us for life. However, I would encourage you to keep a food diary and make changes to see if any particular foodstuff is triggering your problem. I "cured" myself by excluding all dairy products, which lasted for about 2 years before RLS started again. By experimenting, I have again found another trigger - apples! By excluding these I am fairly OK at the moment.

I am beginning to think that once we are sensitive to one food we become easily sensitized to others. At the moment I suspect peanut butter may be another trigger but I shy away from investigation because of the agony and distress that RLS can cause.

I hope this helps.