Radio Interview on RLS

[Joolsg]

The second interview I did with UK Health Radio has been released and is available to download/listen. Not sure if there's a large audience but if even one doctor listens to it I'll be happy.

ukhealthradio.com/blog/prog...

[Kaarina Administrator]

Hi Joolsg, Just listened to your second interview with UK Health Radio. Wow, there is no stopping you. Thank you so much. You were able to pack in so much important information during that interview. You are absolutely amazing. Well done, you!

[Joolsg in reply to Kaarina]

😊 I'll keep chipping away...

[Kaarina Administrator in reply to Joolsg]

You are doing that alright. 💪👍So proud of you. 😀 You are excellent at interviews and public speaking. The words and sentences just flow. It is a joy to listen to your voice and the very important message you are sending out . ✅💛💛

[Joolsg in reply to Kaarina]

Aaw thanks Kaarina. 😊

[Hidden]

I listened to your interview after it popped up from the RLS fb page on my newsfeed it was 2-00 and yes i was awake with RLS playing up. Another brilliant interview you packed in so much information on RLS thank you soooo much for all that you are doing. I will again post it to the other groups on fb that i belong to. Again thank you for getting out there what RLS is and the impact it has on the sufferers lives. ❤️

[Joolsg in reply to Hidden]

Thanks Elisse. I'll talk about it until the RCGPs starts to listen. Sigh. It's such an uphill battle. If you're lucky enough to have a good GP who will listen and read the info , like me, it'sfine but so many are still refusing to accept it's a serious disease.

[Hidden in reply to Joolsg]

A lot of doctors are not happy to read info which will help the patient they see it as telling them how to do their job. which frankly they are not when it comes to RLS

[Joolsg in reply to Hidden]

It's so sad. Every day we see the effects of lack of training and knowledge. Putting patients on really high doses of dopamine agonists and then refusing to believe augmentation exists. It really will be a struggle.

[Irisfoxglove]

Yes thank you so much Joolsg for doing this interview. I just listened to it. It was so informative and clear! I m sure this will help people. Fortunately my RLS is under control since I became 99% vegan! Its left its scars though and I m always on the look out for it rearing its ugly head but so much more reassured because of this forum.Thank you all again.

[Joolsg in reply to Irisfoxglove]

😊

[Catlady4921]

Brilliant and another very informative interview, I will add the this second one to the Flash Drives which I intend to deliver to my GP and The uniformed Doctor at the pain clinic if that is ok as well . It is 8 days since my last Ropinerole Slow Release so am now pausing to make sure it is completely out of my system but in a month or so I will tackle weaning myself off Sinemet Plus which I am absolutely dreading ! Thanks again Jools you are giving hundreds if not thousands of people hope , I am certainly following all the excellent information on this

site ….life savers !!

[Joolsg in reply to Catlady4921]

Thanks Catlady. I'll be thinking of you. Life will be so much better for you once you're off the DAs.I really hope you can persuade your doctor to give you effective replacement meds.

[Catlady4921 in reply to Joolsg]

Thank you 😊

[Insomniak]

Hi Joolsg - just listened to your interview, thanks for being a great ambassador in the fight against RLS. Loved your explanation of RLS and its impact and enjoyed hearing a bit about your own background. You never know, someone with health budget influence might be listening 🤞

[Joolsg in reply to Insomniak]

Exactly. Or if just one GP listens....

[Shad0w2]

This is my first posting on this forum, prompted by listening to your brilliant radio interview which I found really helpful. I experience just about all the symptoms you mentioned, predominately during the evening and throughout the night I also experience occasional symptoms at times throughout the day. There is absolutely no doubt, in my mind, that I have RLS and have done for many years. I did mention it to my GP during a conversation about taking Statins, during which I told him that I would not not be taking them, as I wouldn’t be able to cope with any less sleep.

We didn’t discuss my RLS any further; on my part, because I didn't want to take any of the medications which have caused so much distress to so many people, I also assumed that my own symptoms might be regarded as mild compared with other people.

Thanks to your interview I now realise that my symptoms are far from mild and that I need to talk to my GP again and, at least, ask for a blood test to check my iron levels.

Thank you so much.

[Joolsg in reply to Shad0w2]

I'm so pleased you will speak to your GP again. Dopamine agonists are no longer first line treatment.If raising serum ferritin above 100, preferably 250 and serum iron above 60 doesn't help, pregabalin is the first line treatment amongst experts and helps many patients.

[Scattypatty]

Hi JoolsgI've just listened to your radio interview, well done you. You spoke so well and clear, you deserve to be heard. Thank you so much for all your efforts for us fellow sufferers. Keep up the good work and let us know if you want anything else done to help you. Forever grateful xx

[Joolsg in reply to Scattypatty]

Thanks Scatty Patty. Writing to our GPs and the RCGPs is one way to increase awareness. One day they may start to listen. Fingers crossed.

[John_naylor]

Well done! Brilliant.

[Hidden]

I finally got around to listening to your interview Jools and it's fantastic. So informative and easy to digest. You have a lovely speaking voice too!

[Joolsg]

Why thank you kindly. 😊