Restless everything .. continued - Restless Legs Syn...

Restless Legs Syndrome

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Restless everything .. continued

HilsK profile image
6 Replies

I discovered an article here written 3 years ago expressing how severe RLS . Augmentation can affect bladder function. This is something I have always felt too embarassed to mention. Not even having been given a name for the incredibly awful symptoms of RLS which began to take over my whole body .. all my muscles .. and soo much pain which was eventually labelled as augmentation, I was finding that my need to urinate was increasing dramatically in frequency. I reduced my fluid intake to the point where I became dehydrated to compensate for this. It is the escalation of the uncontrolled muscle movement and excrutiating pain that triggers this. As the pain escalated over time the level of bladder control got worse.

I am wondering if like the original post pulled up, there are others who have experienced this problem.

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HilsK profile image
HilsK
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6 Replies
SueJohnson profile image
SueJohnson

I have found that potassium citrate helps my having to go at night. Mine is not a result of withdrawal, but is something I have had for a long time. I am currently taking 1100 mg as a result of a study at medcraveonline.com/PPIJ/use... showing that it worked at stopping restless legs. I used to wake every hour to go to the bathroom, and now and waking less.

HilsK profile image
HilsK in reply toSueJohnson

Thank you. I'll try anything!!

Sampsie profile image
Sampsie

That sounds miserable HilsK. Have you asked to see an urologist? It might be wise to get it checked out.

My bladder is affected by the drugs I take for RLS - codine or Oxycodone. Opiates can do that. I have a bladder issue anyway, I had some tests. They said it's the messaging between my brain and bladder at fault, caused by autonomic dysfunction. And they encompassed RLS, ME and POTs under that.

But I think it's best to get it checked if you can. There are things they can suggest.

Good luck.

HilsK profile image
HilsK in reply toSampsie

Thank you. That seems like a wise suggestion .... yet getting to see any specialist or clinic at the moment is impossible ... it's something I will follow up asap though.

Sampsie profile image
Sampsie in reply toHilsK

I remembered during the night something else that might help. The urologist said to stop any caffeine and alcohol as they are known bladder irritants. And for me, I'd already worked out that I could not have any drinks with chamomile or liquorice as they had a really inflammatory effect on my bladder which meant stopping all my herbal teas which was upsetting. Perhaps you could reduce your drinks to just water and introduce one at a time to see if it makes any difference.

HilsK profile image
HilsK in reply toSampsie

Yes I have already dropped caffeine and alcohol because it affects RLS, however I drink lots of Liquorice and Blackcurrant tea .. methinks I'll change to Minty teas. Thanks for that. x

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