COVID and RLS

[HilsK]

Covid hit me like a sledgehammer last Thursday. No idea where I have caught it from as I haven't been out during lockdown as shielding my husband. My current treatment regime for dealing with augmentation from Pramipexole has been OK but since developing covid nothing works. I have Covid plus symptoms of RLS 24/7 right through my body.

I wondered if anyone else has come across this and has any solutions.

[m1946]

I read your brief story and feel for you. No solutions I'm afraid. I was going to suggest walking say 6k to 8k steps (about 5Km to 7km) but with Covid I guess breathing is a problem? I only mention walking because in the last 3 days due to my doctors recommendation that I need far more exercise I have embarked on a walking regime as mentioned above. I am suffering from Augmentation from Ropinirole and experiencing rls in arms etc and struggling with less than 3 hours sleep. Maybe it's a coincidence but for the last 3 nights I have slept a straight 7 hours!! 😀I will shortly be again reducing my Ropinirole 7 year prescription from 0.25mg to 0.125mg assuming I can split the tablet!!!

[BurkerKing in reply to m1946]

When, as in what time of day, would you do the walk?

First thing on a morning, before work, straight after work, or sone other time?

[m1946 in reply to BurkerKing]

Preferably morning if you can! In my experience 6000 steps about 4km takes about an hour

[Joolsg]

I hope you’re alright. I would suggest stalling your withdrawal programme until you’ve fully recovered from Covid. You can’t go through both at the same time.

Feel better soon.

[Woody4]

Sorry but the COVID changes everything. Interestingly I fear I might have COVID also. Was informed on Friday that I had possibly come into contact with someone who had possibly come into contact with someone who treated positive. It started Monday and has progressively gotten worse and my RLS has been acting up where the pramipexole had been successful in keeping it in check. So if anyone out there has any suggestions I also would like to hear them. Difference being I’m not trying to wean from pramipexole.

[HilsK in reply to Woody4]

Hi Woody4 I am sorry to hear that. It seems not to matter how careful we are to protect ourselves, it seems to be out there in the community. I caught it off my husbands Carer who no one even told us has tested positive. Yes COVID seems to just negate any medication you have in place to help with RLS symptoms . ..... I'm gradually recovering but COVID plus full on RLS has been beyond what I have been able to cope with. I was given diazapam to try to damp down the effect as nothing helped.

Hope you feel better soon

[Woody4]

Thanks that’s appreciated. I hadn’t even thought about the COVID negating the effects of the pramipexole. But for the first time in months I had RLS 3 nights in a row and was getting movement all times during the day.