Pramipexole

[Hages]

Well the withdrawal ivy reduction from pramipexole is really starting to kick in now wave after wave of sensations !!! It’s a bloody long tapas ahead 😞

[rls-insomniac]

I'm in the same boat withdrawing from ropinirole. Started reducing to 1.5mgs 3 days ago and boy it's now kicking me in the teeth. Dreading what's going to happen when I finally take my last pill. I sympathise with you whole heartedly! This withdrawing really sucks!! I wish you well and good luck! 😊

[Hages in reply to rls-insomniac]

Good luck to you too you friend.

[Hidden]

Hi, sorry to hear you're struggling with withdrawal.

How much are you refucing it by and how often?

Are you taking amything else?

These two things can help make it easier, but it is hard, hang in there!

[Hages in reply to Hidden]

Hi. I posted a picture of my reduction schedule a wee while back but can’t manage to put the picture in this post !! I’m on 50mg of pregabalin to replace the pramipexole but think I may need something to help me along as well.

[LotteM in reply to Hages]

It is on your previous post. If you click on your username (I use the app, but I suspect it is more or less similar on te webpage) then you can access your previous posts and replies.

[Hidden in reply to Hages]

Hi, Yes, I recognise it now

healthunlocked.com/rlsuk/po...

Good that you've started pregabalin, but I believe the "starting" dose is at least 75mg, so you may need to increase that. I read an effective dose is ar least 150mg.

Typically, folks find an opiate and/or a sleeping aid hepful in the final withdrawal stage. That's if you can get a prescription.

In the meantime all the usual non-pharmaceutical measures can help.

It's well worth the effort getting off the pramipexole.

[Joolsg]

Stay strong. I had a really terrible withdrawal, but I had been on the highest dose of Ropinirole (4mg) for 15 years. I know what you are going through. If you can get hold of cannabis, it gives you 30-60 mins of vital sleep. My adult children got hold of it illegally.

Once off the dopamine agonists, the severity of the RLS lessens and disappears in the daytime.You may even find it disappears at night as well.

Good luck.

[Henshaw241241]

Yes I was on pramipexole for a long time then I went in to Augmentation very bad get off them soon as possible I went to see a neurologist the best thing I done then she put me on pregabalin 75 mg very good I take one at 6 pm then 1 at 9 pm with one codene the best thing I done I have Very good night's now all the best Henshaw 241241

[sudokufan]

Hi. Best wishes to you and all others who are currently getting these awful withdrawal problems! I started reducing from 2 mg Ropinirole (Requip) (a dopamine agonist) a couple of weeks ago, have been on 0.5 mg for a couple of nights and am now going to try a night with nothing (if I get a night !!). Also wish I could have been given something to help through these difficult times but am relying on the help of paracetamol most of the time and co-codamol at night. It's going to be worth it in the end, isn't it friends?

Cannabis is still illegal in Britain, but having just received our letter from No 10 telling us to stay at home - I wonder if I would be more likely to be arrested for sitting on a park bench eating an ice cream at the moment, than for possessing weed?

Strange times - keep safe and sane (as much as poss) wherever you are everyone!

[Marvene1942]

Prampexole is the worst drug in my thoughts. It caused me to gain a lot of weight and I gambled terrible with it. I never had a hard time going off it because the Dr prescribed Methodone. I had a hard time with Opiates they mad me severely dizzy. I now am on gabapentin and it is working on me. I take 300 mg in morning and 300 mg at night it seems to be taking away the restless legs

[Vonnie66 in reply to Marvene1942]

Hi there I've been on pramipexole for over 8 years taking 2 at night. My recent extremely bad flare up of rls and my gp wants me to increase pramipexole every 2 weeks going up to eventually 6 at night. I know they make me sleepy but im starting to hear of bad side effects can u tell me what they are?

[Heatherlss in reply to Vonnie66]

DON'T DO THAT !!!

[Vonnie66 in reply to Heatherlss]

Why not? Im so sleep deprived and have fibromyalgia my restless legs are at their worst. I came off gabapentin 1200 my a day in dec. Im desperate

[Heatherlss in reply to Vonnie66]

I understand. I suffer every night too.

6 is too much. way above the maximum recommended dose.

Please read up about augmentation. It is the medication which is driving your disease now.

Also, please post your query separately. More people would be able to advise you that way.

Hidden Joolsg

[Carowind]

Gabapentin was the worst drug I've ever encountered as it caused very violent bouts of vomiting which laid me low for 36 hours! I would rather stick with Pramipexole whatever the side effects and possible augmentation.

[marsha2306]

Are you certain you didn’t have a virus of some sort?