I'm new here I'm a 35YO F, had RLS since I was about 15. Used to be able to manage it until I went travelling and spent a year in Asia (hot and humid) and it sent me up the wall - so much that I nearly went home (UK) to get some kind of medicinal help.
Since then I have moved to Melbourne and was first put on Sifrol, but then transferred to Gabapentin (I'm now on 600-900mg each night). I've reduced it to 600mg for several reasons; I'm sick of being sleepy in the AM (though this is obvs better than the RLS), I'm going travelling again later this year and I'm concerned about taking large quantities of pills with me across borders (approx 100 pills per month), and the availability of the drug/willingness of pharmacies to give it to me in all these countries (central & south america, middle east, india & sri lanka, and parts of SEAsia). However I am concerned if I come off it I will have the terrible time I had before. The other issue with not being able to get the Gabapentin when overseas is that if I don't take them now I cannot sleep at all, so if it's not RLS it's insomnia!
Reducing to 600mg has been ok some nights, but not on others. I'm also on 20gm per night of Amitriptyline, which I have seen on here in the last day or so is actually something that makes RLS worse! I'm on this for pain, but I will ask the doc about transferring to a different drug.
I have also tried the Restific foot wraps but I find I have to have them so tight that they make my feet pulse and that wakes me up, then the RLS does later in the night after I've pull the Restifics off.
Has anyone travelled extensively and had/not had issues with taking the drug with them? Does anyone have experience of getting the drug/other drugs overseas when they don't have a current prescription? My doctor will give me one & a letter but I plan to travel for 12-18 months so it obviously won't stay current for long.
Thanks in advance everyone!