My new Patch: Well I have gone up very... - Restless Legs Syn...

Restless Legs Syndrome

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My new Patch

cdto profile image
cdto
9 Replies

Well I have gone up very fast in the mg of the NORSPAN Patch. I’m now up to 40mg

The reason is so that I could have a stress free flight and be able to sit still

I’m looking forward to coming back and decreasing all my meds

I’m down to 75mg Pregabalin

Down to Sifrol 1.5

Panadeine Forte 4 over 24 hours

Nurofen 4 over 24 hours

So I’m hoping to halve these pills just like I went down half about 6 months ago

My life has changed so much, since the Patch. I no longer have to lie down in the middle of the day because my legs have worn me out. I just live a completely new life.

I am so excited with my new found self that it is still a bit hard to believe

Thank you for reading 👀

I will update in a few weeks when I start decreasing once I come back from my Sunny Holiday 😎

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cdto
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9 Replies
Joolsg profile image
Joolsg

Buprenorphine patch sounds great. It should help you get off Sifrol. My MS neurologist didn’t like the sound of it when I asked about it so I’m hoping King’s College RLS team are more forward thinking. I hope you manage to reduce all your other meds safely.

cdto profile image
cdto in reply to Joolsg

Thank you

Good luck with yours too

cdto profile image
cdto in reply to Joolsg

Hi again

Do u live in Australia as I am familiar with King's College as I done my training thru them

I think it was around Robina way

If so its great that someone, finally are trying to do some study for this

Good Luck

Joolsg profile image
Joolsg in reply to cdto

No - I’m in England. I see the team at King’s College Hospital in London. Sadly they aren’t doing any research as they have no funding and it’s highly unlikely they’ll get any funding.

patmac profile image
patmac

I’m so happy for you!

Pat Mac

cdto profile image
cdto in reply to patmac

Thank you all so much

cdto profile image
cdto

I mucked up I’m only on 20mg not 40 mg

LanaCSR profile image
LanaCSR

How the heck can you afford that patch??? I live in US and even using discount svc GoodRX for only 4 patches of only 10 mg each patch it costs over $100!!!

cdto profile image
cdto

Hi Lana

I live in Tasmania in Australia

I am on a Pension and a lot of drugs here are on a thing called PBS which is through the Government where there are a lot of drugs for $6.50.

If you have a Pension card which I have. I have only been getting 2 for $6.50 while we are trying it but I was told once we get the right dosage that I will get 4 for the month which will still be $6.50

That is a real shame that you are not on anything like this and I am sorry to hear that.

Well I guess I live in the Lucky Country

All the best

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