Walk with Lucy: To coincide with... - Restless Legs Syn...

Restless Legs Syndrome

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Walk with Lucy

Kaarina profile image
KaarinaAdministrator
12 Replies

To coincide with International RLS Day on 23 September Lucy Hoekstra, who lives in the Netherlands, has lived with RLS for many years, during which she says she has encountered ignorance from doctors and the public at large about the condition.

Fed up, she decided to do something about it and has committed to raise awareness by walking no less than 573 kilometers over 26 days from late August until mid-September. Lucy is completing the walk as part of the #brainlifegoal initiative launched by the European Federation of Neurological Associations (EFNA).

On 28 August Lucy will begin walking through the northern part of The Netherlands and Germany and she will finish in Krusbjerg, Denmark, on September 23rd – International RLS Day.

In her own words, Lucy wants "the world to learn about Restless Legs Syndrome".

Should you wish to learn more about the walk she is undertaking, commencing on 28 August, please visit walkwithlucy.com or follow her on her FB page facebook.com/ineintsjeom/?_...

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Kaarina profile image
Kaarina
Administrator
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12 Replies
Parminter profile image
Parminter

Good for her! She is right, the only way we can overcome this terrifying and very harmful ignorance is to get up and do something.

Lucy, you go Girl.

Kaarina profile image
KaarinaAdministrator in reply toParminter

Thank you for supporting Lucy. I totally agree with you. :)

If you can write a message of support on her FB page or her website I am sure she will be delighted to hear from you.

Parminter profile image
Parminter in reply toKaarina

I have already done so.

If we all did something like her, RLS-ignorance would be blown away in a week.

Kaarina profile image
KaarinaAdministrator in reply toParminter

Thank you, Parminter. Power to Lucy! She is a star!

LotteM profile image
LotteM

Thanks for posting this Kaarina. A great initiative. Her aim is amonst others to attract loads of attention from all kinds of media. Thus: spread the word!

Go, Lucy, go!

Kaarina profile image
KaarinaAdministrator in reply toLotteM

I am doing my best, Lotte! If you can send Lucy some words of encouragement that would be brilliant! Thank you for replying. I hoped that you might. ;)

Jumpey profile image
Jumpey

Go Lucy!Brilliant.x

Kaarina profile image
KaarinaAdministrator in reply toJumpey

If you can write a similar message of support on her FB page or her website, Jumpey, I am sure she will be delighted to hear from you.

Jumpey profile image
Jumpey in reply toKaarina

Already done.x

Kaarina profile image
KaarinaAdministrator in reply toJumpey

Thank you Jumpey. :)

Kaarina profile image
KaarinaAdministrator

Only five more sleeps until the big day for Lucy. Please send her a message of support either via walkwithlucy,.com or walkwithlucy.com/

Lucy is doing this walk for all of us, to raise awareness of RLS.

Kaarina profile image
KaarinaAdministrator

Lucy is on Day 2 of the walk, raising awareness of RLS.

If you are able to support her with a few words of encouragement I am sure she will be most happy to read them. Wouldn't you, if you had committed to do something like this to help other RLS sufferers? :) Links at beginning of this thread.:)

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