Pregabalin advice: I would very much... - Restless Legs Syn...

Restless Legs Syndrome

21,446 members15,122 posts

Pregabalin advice

Jumpey profile image
10 Replies

I would very much appreciate some wisdom from Pregabalin users .I am going to give it a go because opiates have stopped working for me. I'm not holding out much hope because Gabapentin made me feel so ill. However, I have nothing to loose in trying it. How long before bed do people take it to be effective and what are you finding is the lowest effective dose? Thanks very much in anticipation of your help.x

Written by
Jumpey profile image
Jumpey
To view profiles and participate in discussions please or .
Read more about...
10 Replies
Pam34 profile image
Pam34

Hi

I’ve been on Pregabalin for a year and over a week I built up to a dose of 150mg. I’ve had no reason to increase it since. I take it about 8ish for bed about 10ish.

I find it pretty good, 80% coverage I’d say. No daytime RLS since I stopped ropinirole. I’d never touch another dopamine drug.

Things to watch for. A few balance issues if I get up in the night but nothing serious. A ravenous appetite - I eat very healthily but I have to remind myself to stop. I think it would be easy to ignore that so I have to be strong willed! Daytime sleepiness sometimes. And I’ve noticed sometimes I can’t remember a word or name but that might just be my age😂

All in all I’m as happy as I can be on any drug (I’d rather not have to take it or any other ) and the side effects are worth putting up with for a relatively good nights sleep and no daytime symptoms.

You have to give it 2-3 weeks to be effective and for side effects to settle as with any new drug.

Good luck

Pam

Jumpey profile image
Jumpey in reply to Pam34

Thanks so much for your thoughtful reply. C

beady3 profile image
beady3

Yes jumpey it all works for a bit , Tramodol stopped working , I am on Pregablin 800 mg it is working for me not every night but better that before , I know that is a high dose they do make me feel sleepy for about 2 hrs when I get up but it wears off, I take it about 8,00 at night , good luck we all need it

Jumpey profile image
Jumpey in reply to beady3

Thanks so much for your advice.x

bedith6 profile image
bedith6 in reply to beady3

Hi Beady3 Tramadol has stopped working for me and also I think I am experiencing augmentation. Do you know if Gabapentin does this? Thanks

bedith6 profile image
bedith6 in reply to bedith6

Sorry !! I meant Pregabalin (*Lack of sleep)

beady3 profile image
beady3 in reply to bedith6

Sorry bedith 6 I don’t know if you get augmentation but I wouldn’t think you did ,

Pippins2 profile image
Pippins2 in reply to bedith6

Pregablin doesn't cause augmentation x

martino profile image
martino

I was finding that taking it in the evening was making me very tired by 10.00 and that is when I watch the news or tried to. I now take it when I go to bed 300mg with a small dose of nortriptyline. It knocks me out.

Jumpey profile image
Jumpey

Thanks for the feedback. Glad it works for you.x

You may also like...

Caffeine / pregabalin / conflicting advice

is not a problem, that I am taking far too much Pregabalin, and that if I cut out ALL caffeine,...

Pregabalin advice please

me sleep. However I battled exhaustion every afternoon. My Doctor agreed to give me Pregabalin...

Dopamine to Pregabalin transition advice, please

(potentially reducing the pregabalin dose later). If this makes sense, how long should I give...

Pregabalin

given me Pregabalin which I am too scared to take-because of the side effects. Any advice very...

Pregabalin

amount of Pregabalin might be. The doctor did give me a prescription for it last year. The dose...