I feel like a new woman since visitin... - Restless Legs Syn...

Restless Legs Syndrome
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I feel like a new woman since visiting this Doctor

I had an appointment with Dr. Buchfuher May 23 of this year. He stopped my Primpexel and put me on Methadone. Today is July 4th and I feel like a new person. No more RSL and I sleep thru the night. So far I have lost 13 pounds. This Dr. is the greatest. He always answers my messages. I can send him a message and he answers me within the day.

On my first appointment he took almost 2 hours with me explaining everything to me. He is the best Dr. in the US,

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Fabulous news!

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Hi,

are you sure it is good news for her? Did you know that Methadone is heroin by prescription, I don't know..

regards

B

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There are others more knowledgeable than I on here re methadone but I believe that at low doses it is a safe, effective, long term treatment. It’s not taken for a high.

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no it isn't! who the hell told you that? actually, it's one of the safest pain meds you can take. As long as your not drinking alcohol with it. But then you should do that with any pain medication. thats, where you hear from a lot of the overdoses, are people who drank with it. you don't get the other side effects that you get from other pain killers. There's was a Doctor in Seattle who was an expert on using methadone and gives seminars about its use and he said its the most underutilized pain medication out there. I was on it for 18 years and never had one problem with it. the only reason I'm not taking it now is my doctor left the clinic and no one would write a script for it because of the opiate epidemic and the government scaring them about giving it out. Thats, when I got rls, is once it was all out of my system. I had 18 blissful no rls years.. I sure miss them!

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Methadone in small quantities is safe. I take one half around three thirty and then two before bedtime.

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That's what we've all been saying.

Just wish he had a clinic in Ireland, and that our medical authority had a better grasp of opiate prescribing.

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Wouldn't it be lovely to have some of that knowledge close at hand. Mind you - would it kill a Dr to read some f***ing research?

Delighted for you Marvene1942, long may it last.

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My neurologist just put me on methadone about a week ago and I am sleeping like a dream. I can even sit down in the afternoon without twitching around. A miracle drug!!!!

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Is this in the UK? So pleased for you.x

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I am in USA, New York State

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Ah. I thought so. It's not normally available in the Uk for RLS. Enjoy the respite from this challenging disease.x

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Wonderful news.

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That's great news.

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How wonderful. I’m delighted for you. If only we could clone the best doctor in the world. The man is a diamond. He has answered all my emails within 5 hours, for free, and I’m not even his patient or in the USA.

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I sent him a couple emails which he never answered and I called him when I was in a crisis situation. He was standing there listening while I begged the person who answered the phone to give him a message but I was told you had to be a patient of his. I’m so happy Minerva that you got such wonderful care and treatment. I wish I had.

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I’m sorry to hear that. Perhaps he will only answer emails if you’re not his patient. I know he will not answer emails if they are not grammatically correct- it’s his one condition. I am not sure why he’s such a stickler for this but it’s set out in his website. I hope you managed to see another doctor to get help.

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Hello! I am so sorry to hear that!! I don’t wish to offend here, but would you like any help with the grammar part (I’m assuming your grammar was as Joolsg said and wasn’t perfect — a bad thing to assume I know, so I apologize in advance)? I think it quite odd to have this requirement in general, especially for someone in a desperate situation. Is good grammar more important than life itself??? (Rhetorical question).

Let me know if I can help!🙂

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Please share his email Id.

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If you visit his website

rlshelp.org/

You will find lots of useful info and pages of email questions and replies. Look at the most recent pages and you’ll see Dr Buchfuhrer sets out how to email him ( he likes Doctor, not Dr for example).

His email is

somno@verizon.net

It’s a very useful website and you may find someone else has already asked a similar question by looking through the questions and replies.

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Are you saying that should I email him I should start the email with, Dear Doctor Buchfuhrer as opposed to Dear Dr Buchfuhrer? Perhaps he means that he doesn’t like the abbreviated form of doctor with in a sentence, which I would fully endorse.I can be a pedant but that does seem to be carrying it to extremes.

Does that mean I also have to spell colour, center etc the American way, and use the word practice as both a noun and a verb?

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I just put Dr B and he replies x

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Thank you.

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Excellent point.

I address him as Dr Buchfuhrer at the beginning of the email and I always use English spelling and grammar and he has always replied. However, his website does mention the following

‘Avoid use of Dr or doc instead of Doctor’

It does seem rather harsh and extreme.

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I’m pretty sure that I read somewhere that you have to spell every word out no abbreviations

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I am pretty confident that my grammar,punctuation & spelling fit his expectations. My RLS doc is also very anal 😐

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I’m so very happy for you!

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Lovely. Great news, and another high-five for low-dose opioids for those of us who need it.

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I hate all the negative things we hear about Opioids . Some people like my husband takes one Morphine tablet a day. He is in severe pain from 4 back surgeries. He does not abuse it. What are people going to do when they are in severe pain.

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The great Doctor Willis, who first described this condition centuries ago, used opioids, as did other physicians up until Big Pharma got its hands on us. Ka-ching, ka-ching!

And methadone is so cheap - they cannot slap a patent on it. Yay.

I wish it were known just how dangerous the usual RLS meds are.

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Yes Primaexole is a terrible drug. Dr. Buchfuher said he was going to do a seminar on not prescribing it to anybody. I was up all night couldn't sleep ate everything in sight. I usually weigh around 135 I was up to 177. It is the worst drug. Now that I am sleeping I have lost 13 pounds.

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I'm glad to hear you have overcome the compulsive thing - I spent a vast amount of money (and I have very little) in online shopping in the middle of the night - and I hate shopping!

I know how awful it feels to suffer a loss of control, and how one feels ashamed and guilty, even when you know it is not your fault.

And nobody bothers to tell you before they prescribe the stuff. I sometimes think that all doctors should be made to take the drugs they prescribe.

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That’s so wonderful - when can he visit UK! I wish.

Seeing GP today to ask for OxyContin - taking the NICE printout. I just pray I get somewhere. I need some sleep.

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What is the NICE printout?

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It’s a printout of UK guidelines for giving OxyContin for RLS. GPS are very reluctant to give out these tablets - they need to experience it just for a night !

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I wish I was rich I would buy round trip tickets do you could see my Doctor

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Isn't that marvelous!!! I hope your relief continues.

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Yes I hope it stays. Dr. B told me he has a 98 % sucess.

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Ab fab news. Hooray for you.x

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REALLY pleased for you. Dr B answered my email promptly and was very helpful - I'm in the UK!

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How did he help you? I suffer from severe restless legs but the very well respected consultant in the RLS field has never recommended methadone. I live in the UK

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Hi Snowdrop

Dr B looked at my particular situation - taking Pregabalin and Oxycodone following withdrawal from Ropinirole - but I was getting extreme and intolerable tiredness and RLS in my arms in the afternoons and evenings, unable to drive because of fear of falling asleep!

He told me this was caused by Pregabalin. He recommended coming off it and simply taking Oxycodone. In the event, my GP (and I) felt we had nothing to lose by first switching (on advice of UK Neurologist) to Gabapentin. This seems to have worked.

This still leaves me the option of switching to just Oxycodone if/when necessary, but while it works I'm very happy to stick with it.

He would not recommend methadone for me because he knows we are not allowed to have it in the UK, more's the pity!

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You are very lucky to have such an understanding helpful doctor

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Marvene,

Gosh, that sounds wonderful for you. I've only heard good things about Dr. Buchfuhrer. I was weaned off pramipexole several months ago. I'm on Horizant and Tramadol and they are working great now. I see a neurologist in St Louis on July 25th. He's the one that has prescribed what I'm on now. I'm a little too sleepy during the day for me, will see if he can tweak it for me when I see him. So happy for you though. Take care. A good night's sleep is so important.

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Thank you so happy you are off the terrible drug

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Awesome news!

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I've been on Methadone for my severe RLS for about a year and a half and it has 100% saved my life.

That's it.

Don't knock it 'till you try it if you need to.

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I know I do not tell many people that I am on Methadone as they become shocked and tell me lots of things. But as you say sleeping is the best

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If you live in New York, and Dr. B is in California, I wonder how he was able to prescribe Methadone for you? Does his office renew it each month and you pick it up locally? The reason I ask, is I spent a lot of money to go to Mayo Clinic in Minnesota, I live in Illinois, and they refused to prescribe any type of opiate because I was an "out of state patient" (because they have no way to prove I am not abusing opiates, I am not - only want RLS relief). It was a huge disappointment.

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I live in Northern California

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Its so lovely to hear of success stories, you saw the best doctor possible , we all wish we could have a Dr. B.

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OK if you're in US. I'm just plain jealous as my RLS can go on for more than 24 hours at a time and magnesium, gabapentin, ropinirole, tramadol and cbd oil have had no effect at all.

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