Rls

[Amberleaf50]

I want to thank everyone who’s contacted me the latest update is I got to see my doctor today he sending me to have a body scan he has give me new tables called ropinirolle for rls I just hope it works for me I’ve dun that much damage to. My legs So anybody out there with rls don’t do damage to your legs to try and take the pain away thanks everyone who text me I was going to give this one more try and the just o d if it didn’t work Iim a bit happier now the doctor didn’t no about rls or eck bom Syndrome in till I showed him a clip of the program

[Joolsg]

Hi Amber

Ropinirole is a dopamine agonist so please be careful not to take more than 1 mg.

You should start on 0.25mg and increase slowly to 0.5mg.

Monitor for a week and only if it doesn’t help increase to 1mg,

Do not go above 1mg. Most doctors know absolutely nothing about RLS or dopamine agonists or Augmentation.

It is very important to stay on the lowest possible dose. If you stick to that, you should be able to stay on it longer.

You should also get serum ferritin levels and trans ferritin levels checked. If serum ferritin is above 100 you have less possibility of augmenting.

Please read all you can about dopamine agonists ( Ropinirole is the most common in UK) as doctors don’t have the time to educate themselves and rely on drug companies who are only interested in profit.

I’m delighted your doctor has listened to you and I hope the low dose Ropinirole helps your RLS.

Take care

[Amberleaf50 in reply to Joolsg]

Hi joolsg the tablets is 5mg to take 1 table per night for 5 days then go to 2 tables a day and thanks for your text

[Joolsg in reply to Amberleaf50]

Please check the dose again amberleaf. Do you mean 0.5mg? and then increase to 2 x 0.5mg? 5mg is 5 times the new recommended max dose and 10mg would be 10 times the max dose.

I really hope you have just missed out the decimal point.

Also definitely get your serum ferritin checked as you are less likely to have severe side effects if your levels are above 100.

take care,

jools

[Amberleaf50 in reply to Joolsg]

Sorry I did mean 0.5mg

[Dakota13]

I’m glad things are looking up for. Prayers coming your way😊. I actually did mess up my knees by over extinding my knees. Last summer I did have to have a partial knee replacement. My other knee is now starting to become painful. Good advice on your part.

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Great news!

[slim1953]

Great. Now you can start moving forward. Keep the ropinirole dosage as low as possible. Right knee gone kaput. I think due to the spams. My back is also on its last legs so to speak. Waiting to see the specialist.