Rls nearly cured: I have had rls since... - Restless Legs Syn...

Restless Legs Syndrome

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Rls nearly cured

Bigears35 profile image
5 Replies

I have had rls since i was about 17, im now 38. Never knew what it was. Had it diagnosed two years ago. Im on 1x ferrous sulphate and ropinerole. Which is two tablets at 16.00 and two at 21.00. Still got symptoms every now and again. Hoping to find a new cure watching the documentary on c5. Bit gutted.

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Bigears35
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Pam34 profile image
Pam34

What dose of ropinirole are you on and why do you take it at 4pm and 9pm?

Pam

Bigears35 profile image
Bigears35 in reply to Pam34

Two 0.25mg. At both times. I was on just two 0.25mg just at 9.00 at night but symptoms was still there. So drs at hospital increased. Just have it now and again.

Pam34 profile image
Pam34 in reply to Bigears35

So 1mg per day. That’s the new recommended maximum dose. (Although many doctors are not yet up to date and continue to prescribe up to 4mg). I’m glad it’s working for you and I hope it continues to do so for a long time.

Word of warning - watch out for symptoms starting earlier in the day or the ropinirole not lasting as long. This could be a sign of augmentation and believe me, you do not want to go through this.

Educate yourself by reading the links below so you are armed with the correct information if you have to see your doctor again.

rls-uk.org/augmentation-reb...

sleepreviewmag.com/2015/02/...

Pam

Smiler53 profile image
Smiler53 in reply to Pam34

Spot on Pam as usual😁

franop profile image
franop

Know the feeling I thought this was a new cure

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