Stupid me!

[Pippins2]

So I forgot to put on my new patch last night so precisely zero sleep and I have to be out soon with a busy day in front of me 😢. I would kick myself but RLS is actually doing that for me. X

[Henshaw241241]

Hi happy Christmas to you all you are you now I don't know if I told you after years of RLS a new doctor sent me to see a neurologist the best thing happened to me she changed my. tablet's I take 1 pramipexole at 15.00 and 1 at 21 00 the best nights sleep in years 241241 Tony

[Pam34 in reply to Henshaw241241]

Hi Tony

I see you have augmented on pramipexole in the past. Be very very careful not to increase the dose and look out for symptoms increasing or starting earlier in the day. Having augmented once on pramipexole it’s very likely it will happen again.

Pam

[Madlegs1]

So very sorry to hear that story ,Pippins.

I hope plenty of strong coffee will keep you going.

Great to hear you are active- I had been wondering where you had been the last while.

Happy Christmas to you and all yours, for the season.

[Hidden in reply to Madlegs1]

Pips is more out than in. always a busy girl. Wears me out just hearing what she is doing for the day, lol

[Pippins2 in reply to Hidden]

😆😆😆😆😆

[Pippins2 in reply to Madlegs1]

Hi Madlegs I am ok thankyou just been busy elsewhere but I do pop in occasionally to see what you are all up to! Happy Christmas to you too x

[Shimpmcc]

Are you saying there is a patch to wear for rls? If so what is the name of it. Thank you.

[Madlegs1 in reply to Shimpmcc]

Neupro.

[martino]

You have my sympathy. Neupro works for me so I know when a patch has come off! I also take long lasting Tramadol which I know also is very helpful. A couple of days ago I was getting ready for bed, went to my pill box and found two rather than one of the Tramulief pills- I hadn’t taken the 10.30am tablet! Rather oddly an effect of this was that leg movement woke me at 1.30 and my legs wouldn’t calm until I got up. A rather annoying lesson. Happy Christmas to you and anyone else who reads this!

[Pippins2 in reply to martino]

Merry Christmas to you too and thankyou for your reply x

[Redspot]

Agony!

Please tell me....what patches work for you....

A fellow dufferer

[Pippins2]

Hi they are called Ritigotine but are packaged as Neupro patch. They are a dopamine agonists class of medication. If you are in a country where you have to pay for prescriptions they are expensive, in the UK they are standard prescription price x

[rls_optimist]

Hi, Pippin, hope your legs have settled down some. I also use Neupro and have had much better luck applying it in the morning. It takes about 12-15 hours to reach its fullest effect, according to the graph you'll find in the big sheet they package in every box. And I have definitely found that to be true. So try different times of day and see if it makes any difference for you. I have also found that it's most effective when applied to my shoulders. If I'm careful, I can map out 10 sites on shoulders alone (not quite the 14 they recommend, but enough for me to avoid most skin irritation. Again, I recommend experimenting with different locations. I use the 2 mg patch. Long may it work for you!

[Pippins2 in reply to rls_optimist]

RLS optimist thankyou for the advice I never thought of applying in the morning I tend to put my patch on around 6 o'clock in the evening after a shower. I will give it a go though. I have been on the 1mg patch for 6 years now and it's made a big improvement in my RLS. I do react badly to the adhesive backing and find my abdominal area to be the best place for me. It made a mess of my arms but I will give shoulders a try x

[Annieapple]

Shoulders are definitely the best place for me & when travelling to the StatesI kept my U.K. patch time of 6pm which was 1pm there and guess what... better nights! I am back in the UK now and am going to gradually reduce the time backwards to lunch time.

[Pippins2 in reply to Annieapple]

I am going to try putting my patch on earlier too and maybe try shoulders x