I suffer Restless Body.I am close to loosing my mind as I can't sleep and it's so painfully coming into my day!
How do I work?
I don't even have a job at present, and really need an income, but I know how I feel during the day, and I shouldn't even drive !
Please please help us all find a cure.
I know Im not alone but as I said, I'm loosing my mind and I'm feeling suicidle because of it . Sorry if I've upset anyone with my honesty.
Hi, can you tell what medications you are taking for your RLS and for anything else as many meds can worsen RLS. So sorry that you are having such a bad time
Don't worry about upsetting anyone my first post many years ago was very similar to yours.
Have you spoken to your GP about how depressed you are feeling as suicidal thoughts should never be ignored.
I will await your response on your meds. Hang in there x
Hi I understand have u seen a doctor recently talk to us we will try to help any way we can u r not alone take care u can pm me if u like
Keep trying and don't give up. I was feeling the same way with leg and arm pain all night and have found a few things that at least make this crappy disease more tolerable.
I can relate to you 100% I have questioned God and every other living creature as to why I have to suffer so?!? I wonder while suffering, what I’ve ever done to deserve such a plight! When I’m exhausted from working a 12 hour shift, having barely slept the night before, and my legs/body kick into action, I just end up sobbing and actually becoming hysterical! It’s a miserable way to live...
Lisztlover, long hours on your feet can exacerbate the legs a lot. Is there any way you could take sitting breaks through the day.
Also check you are not taking any meds that make rls worse. There is a list in the Earls website. Antihistamines, some anti-depressants, Benedryl, amitryptiline - all these and more can have a drastic effect on rls.
Also be VERY cautious about mirapexin (pramipexole) if you are taking that. It can eventually make your symptoms MUCH worse.
Thanks so much for your reply! I’m unable to take many breaks that involve sitting down. I do sit when I get the chance, though. I’ve been on Lithium for 30 years and coming off of it just isn’t an option. I feel the same way about Cymbalta...it lifts my mood so well, I’m tolerating it, and have no intention of going off of it. I have experienced augmentation with Mirapex and that’s why I’m weaning. I do think of myself as being on 0.25mg now.
Hello I feel the same way but my is restless tremor through my whole body sometimes faint vomiting so weird feeling don’t sleep or eat the feeling is so bad and awful I just wanna give up to .... was out on
Anxiety meds and emerge many times nothing was working so finally tested my thyroid .... some days it last hours sometimes days almost like a menspause flush feeling as we really scary and DJ annoying .... are you on anything or have any symptoms like me
I’ve been on meds for my thyroid for years. Thanks so much for responding!
Try Gabapentin, works for me. I was on ropinirole for 1 year, not working for me.
Yes! I’m on Gabapentin 900mg/day. I do think it helps, but my body wants Mirapex right now!
Oh my gosh, I wrote everything you said here like 3 months ago!!!! I’m so sorry 😢 it’s hell and more!! I ended up seeing a pain management dr. I had exhausted every other kind of dr. And had even had an iron infusion which did not work for me. The only medicine I hadn’t tried was that patch (i forget the name). I seriously That about suicide as well. I had quit my job prior to this RLS all of a sudden becoming soooo bad and every night and a lot of the day and the no sleep thing, due to taking kinship care of my sisters baby for a while. I ended up after 4 months not being able to help anymore due to the rls!! Fortunately we had a friend that was already envied providing respite care for me when I needed it and she fosters children, so social services placed her there for a while. Baby is now back with mom. But anyway, the quilt and shame, frustration and anger and embarrassment in that was just too much!! There’s no way I can work now, I’d get fired the first week because I’d be calling out!!!!!! So I applied for disability. Still waiting and when I get denied we are going to go forward with a lawyer. So 3 months ago, the pain management dr. put me on Percocet 10-325 and 900 mg of horizant. Horizant was a newer drug no other dr. Had mentioned to me yet but it’s essentially gabapentin. But it more specifically works to the rls. All that being said, the RLS is still horrible! So I take the horizant at 5:30 pm and the perc at 8pm. The perc after an hour totally works but only for 3-4 hours. And I feel like there’s no rhyme or reason with the horizant. It makes me hyper after a period of time or it can put me out!! Like out out, like I’d probably sleep through a fire!! I’ve slept up to 15 hours straight!! And if I have a dr appt I can barely stay awake if the horizant hasn’t worn off!! So I’ve since not takin the horizant on nights where I need to get up the next day. The Percocet alone does not help me sleep but gives me 3-4 hours of relief so that’s the ONLY time I get to relax and enjoy life!! So I’m up watching tv and enjoying 3-4 hours of just being able to relax!! But when it wears off I’m back to not being able to sleep because of the RLS. Something I get lucky to sleep with just the perc in me, but more often not. So since I joined this and other sites, I found out about Johns Hopkins bayview in Baltimore MD and they have a specific RLS center, so I go there at the end of November. So my advice to you would be that since your feeling so hopeless, if you haven’t already, seek out Main management. And don’t let this disease win! Please keep fighting. I know it’s makes life unbareable in many ways but you I’m sure are loved and needed by many people. Think how devistated that would leave them. Pray pray pray and hold on!! My utmost fondiss wishes and deepest prayers go out for you!!!! And REACH OUT TO A HOTLINE IF YOU FEEL LIKE THIS AGAIN!!! God Bless you sweetheart!!! Prayers for all of us!!
Thank you so much!
4174 -
Thanks for posting. As you can see from the responses, you are not alone in your search for a solution to your RLS symptoms. People on this site "get it" with regard to how debilitating this condition can be.
Another possibility for you to consider is kratom. I was on both pramipexole and oxycodone, and I was able to drop both at once by using kratom. The kratom worked better than the meds in mitigating my symptoms, and in many respects, it gave me my life back. Others who have posted on this site have posted similar experiences. Worth a look.
In addition, changing to a plant-based diet has helped some. Also worth a try.
Sending you best wishes for speedy relief.
Doug
Please, please, please do NOT consider suicide as an alternative to ending pain! First , let me say I lost my grandson to suicide 3 years ago and you have NO idea how that affects the family he left behind or the family you would leave behind! So STOP now and seek help!
Secondly, I also have RLS and it is miserable for sure but NOT worth taking my life!
So can we talk?
Im feeling stronger, I have down days but Im back up. Have a support network which is working. Thank you so much for your understanding. I feel better already having you lovely people to talk to about it !
This in itself is life changing.
Thankyou again and again.
So good to hear that you are feeling better , have a good support system and have reconsidered your dillema. Please talk out your feelings here anytime!!
4174,
Please forgive me for getting confused, with my chronic sleep deprivation, and thinking that this was my post! So embarrassing, but true! Sorry...🙂
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