Your chance to have an RLS voice... - Restless Legs Syn...

Restless Legs Syndrome

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Your chance to have an RLS voice...

Daragh profile image
8 Replies

To coincide with International RLS Day on Sunday past, the European Alliance for Restless Legs Syndrome (EARLS) is conducting a study to understand your experience of RLS.

The survey should take 5-10 minutes to complete and your answers will be completely anonymous. It is currently open to residents of the UK, Ireland, France, Finland, Netherlands, Austria and Germany.

This is an important survey so please do take a few minutes to complete it. We have already had over 1,200 responses but we need more, many more.

Thank you

earls.eu/earls-patient-surv...

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Daragh profile image
Daragh
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8 Replies
Kaarina profile image
KaarinaAdministrator

I have completed the survey. If you reside in one of the countries mentioned above, I hope you have too.

Kaarina profile image
KaarinaAdministrator

If you live with RLS, it is critical that you complete this survey.

RLS-UK is a member of EARLS so this is an important opportunity to have our voice heard. Please, if you have not responded to this anonymous survey, consider doing so.

Joolsg profile image
Joolsg

Done. I think this should be posted every few days to remind people to complete it.

Thanks for this survey- I think it will be invaluable.

Kaarina profile image
KaarinaAdministrator in reply toJoolsg

Wow, a reply.;) You do not know how much that means to us at RLS-UK, Joolsg! Thank you so much.

Great minds think alike! I was thinking of bumping up this thread at least once a day if there was zilch response.

I also wish to thank those that have "liked" this thread and those that have have "liked" my plea of "If you live with RLS, it is critical that you complete this survey."

Joolsg profile image
Joolsg

Thanks Kaarina,

I was on holiday last week so took a break from the website. I clearly missed the most important post!

Thanks again

Jools

Kaarina profile image
KaarinaAdministrator in reply toJoolsg

Hi Jools,

I had noticed that you were AWOL. I hope you enjoyed your holiday. Good to see you back again. :)

I came so close to replying several times but the post looked so official that I thought I should leave it alone! I filled in the survey first thing though. Thanks Kaarina. It’s great to think of you folks turning our observations into official data.

Kaarina profile image
KaarinaAdministrator in reply toinvoluntarydancer

Thank you so much for completing the survey ID. It is very much appreciated.

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