So much worse

[Smiffyliz]

Legs and arms have got so much worse. Wake up after about hour and half to two hours with arms legs and even fingers crawling. Getting desperate. None of my tried and tested remedies work and can’t take more painkillers for over two hours. Feel like a zombie all day

[Parminter]

That sounds familiar Smiffy.

But we need more information, please.

What is your ferritin level?

What meds do you take? (All of them) How much, and when?

What painkillers?

What alternative things do you try?

[tupper]

I do knew how you feel, it really is a nightmare, I am so sorry, I have also had nights like yours. Now I take

GABAPENTIN prescribed by my Doctor, and as long as I take the recommended dose as follow, 300 milligrams, my nights are RLS free.

AM 2 pills, PM 4 o'clock 2 pills PLUS 1 TRAMADOL 37.5 milligrams, before bed 3 GABAPENTIN plus 2 TRAMADOL, and this works for ME. It is a lot of medication for sure, but for me it is an ENORMOUS relief. I do wish you better nights.

[Smiffyliz in reply to tupper]

I have pregabalin and cocodamol but not working right now

[Eryl]

Sadly remedies only treat the symptoms, not the cause. Have you tried changing your diet? Some of us have had great success, most often with fodmap or low calorie diets. Sometimes people have certain trigger foods or ingredients, like artificial preservatives, and those can be hard to track down, but keeping a food diary helps.

[Hidden]

I’m so sorry! It’s a nightmare, isn’t it? I briefly ran through your profile and stopped at the one that mentioned leggings. Are those the same as support stockings? Those, as well as lots of other non-medical things, are in my checklist of things to try. I can give you my list if you’d like.

It is so demoralizing to have things stop working, so I can try and help by giving you my list.

[dotgab]

Restavin liquid vitamins by Rejuvica first thing to work for me all my life. Also sleeping on my stomach stops it, but cranks the neck!