Is there life with rls?

[Bouncingbee]

Rls has hyjackef my life. I barely recognize myself. Something gotta give.

[Madlegs1]

We need more info on your medications- how much, how long.?

Have you read the last few weeks posts here? There is a mountain of experience and advice for anyone who is interested in answers.

Cheers.

[Graham3196]

I have sent some info in a private message.

[RLSdaily]

Everyday is a fresh start. Chin up.

[Hidden]

I know exactly what you mean! Incredibly life-sucking.

[TheDoDahMan]

If it weren't for the kratom "milkshake" I drink 3 times per day, I would feel exactly as you describe. (See my previous posts for a further description of my kratom-shake preparation.)

[Mona23]

Based on my experience and things I’ve read, it’s necessary to deeply accept the fact that RLS is a permanent, debilitating condition that can get worse on its own, or through augmentation - because you’re right, it has hijacked your life. It can interrupt one’s abilty to work, usually due to daytime sleepliness, and it can damage relationships. Being chronically sleep deprived has all kinds of health ramifications, too. But accepting all this is step one, because when we accept what’s happening we will allow ourselves to design a life that works around our RLS. (Accepting it does not mean give up; it means, I recognize that I’m not the same as I was pre-RLS, so have to start with that premise when planning things) My husband can’t be thrilled when I’m so tired after a bad night that I doze off and on all day, am not fully “present,” and have a hard time mustering up the energy to go out to dinner - but he knows why, and helps me as much as he can, primarily by being comopassionate and encouraging. So I suggest you accept your condition, stop fighting it with worry and anxiety, and develop a plan. If I were working with someone with RLS my first suggestion would be to keep a journal - short entries focused only on what I notice - 11:30 am - symptom free. 4:15 - legs starting to twitch, so took a _______. 10pm - warm bath with epsom salts, stretching in tub. 6:30am - woke up tired still but slept all night.

Something like that, so the person doesn’t dwell on feeling miserable. Step 2 - take all your journal info to your dr, along with articles about recent findings in the RLS world, and have a chat. Accept that experimentation is the name of the game, and look at it as an adventure of discovery. Have I always been good about that approach? Absolutely not! It took me way too many years to figure it out, but it has been helpful to my quality of life. Although I’m not experiencing the things I describe here right now, they were part of my life for almost 40 years. There is hope for a great lifestyle!

[TEAH35]

There is something you will notice that will become blatantly obvious if you read all the posts on this site. Altho we all experience the same torture, we can have it at different levels of severity, different lengths of time, some have had it since childhood, some didn't get it until middle age etc. And some women don't get it at all until pregnant and then it goes away after the birth. Personally .... I don't know life without RLS, so if I was to answer your question (and I'm now 64), I would have to say no. Because for me, the only way I could ever hope to be free of this hideous afliction is in the afterlife. OMG, I just had a horrible thought.

There's no guarantee that I won't have it there either!