Just a story really that is driving me mad! I had 2 discs replaced in my neck. Following 3 months off work and 3 months lost to painkillers (I was in a happy place then!!!!) I got these weird cramps. It took about another 3 months of visits to my neurosurgeon before he believed that through my internet research this could be RLS. So I saw a neurologist who also didn't believe me but treated me. Lo and behold things improved. Then things got a bit worse so I hunted out another neurologist from a London hospital who was amazing. 2mg of ropinirole a night and 3 years of freedom... Then it returns with a vengeance! I am lucky enough that I tried a new hypnosis technique - by Paul McKenna. It worked incredibly well, I felt the RLS starting then it would subside. That was great for a few months but then wore off. (I am seeing Paul again in a few weeks so will ask him about the technique used as it was amazing and hopefully try again!) however now knackered through lack of sleep, tramadol is the only thing to let me sleep. It affects my legs arms and torso now. No-one can imagine how bad it is and how desperate you feel! I have flung my legs and arms around and tried everything. I am not keen on taking tramadol regular as it can be very addictive and the effectiveness wears off. So now I read about augmentation! A visit to my GP or neurologist calls I think and another few weeks of teaching them about RLS providing information. As a healthcare professional myself I cannot believe there is not more help out there and better education for the primary care providers. I speak to many patients every week who have RLS, some treated well some not. Some don't even know that's what they had! So that's my story so far! Ps my neurosurgeon didn't believe that the disc replacements caused this but there are numerous cases of this. However now knowing what a bad case of RLS is like I do realise I had it previously but not as bad. Also my Dad has it mildly.
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