Ferritin levels: My neurologist... - Restless Legs Syn...

Restless Legs Syndrome

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Ferritin levels

Smiffyliz profile image
6 Replies

My neurologist suggested I get ferritin up to 50 and I have managed this but see on here it should be higher. How do I get it higher as really strong iron supplements upset tummy

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Smiffyliz
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6 Replies
Joolsg profile image
Joolsg

Ferrous bisglycinate every other night. For some reason, levels increase faster if taken every other night. It’ll still take months to get levels up to over 100 but be patient , it does work.

It is so much easier to get levels really high with an iron infusion. They have such a positive outcome for lots of people. I would love to get one.

Adge profile image
Adge

The brand name for Iron Biglycinate is called Gentle Iron. You want the 20mg tablets. My levels have gone from about 70 to over 250 in about 4 months, taking every other day along with a Vit C tablet.

Madlegs1 profile image
Madlegs1 in reply to Adge

At night on empty stomach, with the vit c or orange juice.

Parminter profile image
Parminter

Apparently, it is hard to get beyond a certain level with oral iron. It could take months, or years.

Ask if you may have an iron infusion, preferably ferric carboxymaltose 1000mcg. It changes many lives.

If your provider is unhappy with this, either show him a good academic paper or use Iron Bisglycinate or Floradix Iron, neither of which cause stomach miseries or constipation.

Be aware that an iron infusion, necessary as a result of low brain-iron stores, may not help those with secondary RLS rather than primary RLS.

But if you have primary RLS, and your ferritin level is 50, that is just too low.

rls.org/file/member-publica...

hopkinsmedicine.org/neurolo...

DicCarlson profile image
DicCarlson

Also you could try a patch from PatchMD - bypasses the stomach completely. patchmd.com/Iron-Plus-Topic...

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