Restless legs syndrome

[Stellalynesay]

Hi everybody I've just joined I suffer with restless legs syndrome

[Madlegs1]

Welcome.

What exactly are your symptoms and what medications are or have you been on.?

[Stellalynesay in reply to Madlegs1]

Burning calfs twitching feet worse at night am on ropnirol and drink loads of tonic water

[Madlegs1 in reply to Stellalynesay]

How long have you been on the Ropinerol and have you been increasing the dose to get better relief?

That " pain is gone " may be spamming- please let us know.

Thanks and look forward to hearing from you.

BTW- tonic water will do nothing for the rls.

[Stellalynesay in reply to Madlegs1]

Been on ropinerol since 2013 am.on 2mg they won't up the dose

[mrwea in reply to Stellalynesay]

"They" won't up the dose? Why not? You are nowhere near the recommended dose limits for RLS. Unless there is more to this story, you should get a new practitioner to manage your RLS. Seek out a neurologist who specializes in movement disorders.

[Kaarina Administrator]

Hi Stella, have you had your ferritin levels checked? RLS is frequently associated with iron deficiency. For those suffering with RLS ferritin levels should be higher than what is usually considered to be normal.

[Stellalynesay in reply to Kaarina]

Never been checked for ferritin levels my doctors aren't the best

[Kaarina Administrator in reply to Stellalynesay]

Perhaps you can request this simple blood test to check your serum ferritin levels. Ask for a copy of the result, do not take your doctors word for it that your level is normal. The level should higher than "normal" for those suffering with RLS. The number should be around 100.

If you are in the UK and have not visited the RLS-UK website here is the link which may be of help to you: rls-uk.org

There is a link on the website for medical professionals that you doctor may like to take a look at: rls-uk.org/professional-res...

[mrwea in reply to Stellalynesay]

Hi Again:

Do you live "way out there"? If so, then you must make a trip to the "city" to find a good neurologist who is familiar with/ specializes in movement disorders.

Sheesh, I am a healthcare provider. I cannot stand a provider who will not admit that he/she may need a the help of a consult.

[peterfromlondon]

good luck ..ive had it for years , magnesium helps me . but some nights (last night ) are still dreadful , only slept around 4am

[ray_redfern]

try pramipexol from your doctor. after 25 years it worked for me instantly One tablet every 24 hours. It is normally used for parkinsons

[mrwea]

Hi:

Welcome. Sorry that you had to join.

There are many medications to help to control/eliminate your RLS symptoms.

Usually, the first choice meds are the dopamine agonists:

Dopamine agonists: These are most often the first medicines used to treat RLS. These drugs, including pramipexole (Mirapex), rotigotine (Neupro), and ropinirole (Requip), act like the neurotransmitter dopamine in the brain. Side effects include daytime sleepiness, nausea, and lightheadedness.

Gabapentin, an anticonvulsant , may be used

Clonazepam, a benzodiazepine ( or "tranquilizer" as they are called, will relax the smooth muscle.

ALSO: Try a warm shower to control symptoms