What works for me: What works for me... - Restless Legs Syn...

Restless Legs Syndrome

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What works for me

davidadill profile image
davidadill

What works for me:

1. 500mg of magnesium 6 hours before bedtime (if I take it later I usually have RLS after 3-4 hours)

2. 24mg of codeine just before bedtime

3. 1.3 miles of walking at 4 mph on the treadmill just before bedtime

4. A folded bath towel under the bottom 18 inches of my bed sheet prevents hot feet (this seems crazy but it works for me)

5. After about 7 weeks the codeine benefits start to decline, so I go off codeine for 7-8 days and then efficacy returns.

6. This may be irrelevant, but I also walk about 8-9 miles per day, mostly inside my house. When I sit on a couch or go to a movie, I sometimes have RLS, but other than the movies or driving a car I seldom sit for more than 30 minutes. Leaving aside RLS, sitting when you could be standing or better yet walking is a dumb idea. It is better for your brain and your body and your weight control to be moving. People sometimes look at me strangely wondering why I am walking while they stand or sit. I look back at them and wonder why they want to be stupid and have poor health and eventual obesity.

7. This may be irrelevant, but I also do 35 deep knee bends before bedtime.

8. This may be irrelevant, but I also go up and down the staircase 4 times just before bedtime.

Other than that, I am reasonably normal....

This has worked perfectly for the last 6 days, meaning that I sleep between 8-9 hours with no restless legs ever.

10 Replies
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Hidden

Great! I’m glad you have found things that work for you!

Hi David

Thanks for sharing this very well defined regime. Its very good to know that this works for you so the rest of us have the hope that it might work for us as well

I have recently started doing deep knee bends but for a hamstring problem. With some effort I can do ten in one session. I'd better raise my game and see what happens!

Thanks

Graham

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Hi,

v.well, good for you. You are doing good job for now. Please watch for 24mg codeine as it is a horses dose. In my medical understanding none what you do matters only this opioids what you take do this trick but you are on so high doses I'm wondering who is the subscriber for you and I bet you did not know you are going Micheal Jackson end way, I hope you talk to your doc. Try this, do not take opioids (codeine) once and you will see a hell brake lose. Than talk to your doc. Adding potassium (180mg) to your Mg will help. O boy, good luck,and hey, read posts bellow nobody, I mean nobody will tell you the truth as people don't what make you hurting but medically speaking nothing personal you understand? You are at risk, do reed god google reg.opioids, learn if it is worth it to do this way or maybe it is too late and your opioids dependency has set in, well good luck

B

davidadill profile image
davidadill in reply to Hidden

Bodziu,

You are incorrect. 24mg of codeine is 6mg below what the Mayo Clinic suggests as the starting point for treating RLS and their recommendation is that 60mg to 160mg are reasonable levels. I am told that the sign of addiction for opiods is that when you stop taking them your body start to shake. When I stop I just get restless legs more often. These doses are far below what typically leads to addiction.

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Hidden in reply to davidadill

Hey,

sorry I got the numbers wrong, my apologies. And thank you for sharing your story, that takes some guts and I give you a credit for that. Thank you again. My 5 c. bellow:

Opiates rock and do work. Somehow docs give it to people when they don't know what to do as it is a pain killer. So you are all good with 24mg, enjoy, I guess Micheal Jackson was at 160mg + than? He trusted his doc, Btw, Huston same thing, no? I've seen idiots or how to say, legally medicated people on 200mg a day, hahah, they get scripts for that. Good doctors. You trust them? Did you know that old day a dose was about a few mg? I can't remember 3 or 5 mg, so it's been updated 10 fold. Why? Also there is a factor doctors don't mention too much (don't know or what?) , special enzyme for absorbing opiates either you have it or not is a big thing. For one person 3mg may be equivalent to 30mg at the end of a day, so if you are the person where 3mg is enough and you are taking 30mg in real life you maybe at 300mg already, I don't know exactly so please don't quote me how that math works, I was told about this phenomena of CYP450 enzyme when I was on pain killers due back operation. My doc upon asking told me that, well do your own research I guess. It seems that you are google educated person and addiction is as simple as that? Shaking, hahh. Let me tell you and it is not from google, real life that is, addiction is when your family tells you that you are addicted. Addiction is when your family suffers because of the choices you make, addiction is when you are in denial saying you are not addicted, there is 10 more what addiction is, shaking, well, people never test that way if they addicted some how not sure why.

regards

b

davidadill profile image
davidadill in reply to Hidden

I figure as long as I stay at 24 mg (where I have been for 11 months), I should be very safe. It means not using it for a few days every few weeks, but I can live with that.

Dogdoo profile image
Dogdoo in reply to Hidden

Michael Jackson died from a propofol overdose, not an opiate overdose.

He was an opiate addict for sure but not what killed him.

Whitney Houston did crack, ate some valium, passed out, hit her head and drowned.

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Hey,

v.smart of you,

b

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Hi,

thank you for sharing, it is a complicated procedure of yours but I bet there are hundreds of us having a schedule to contain rls. Unfortunately rls changes and we have to change all with it. I like your question at the end of your post:" to be stupid and have poor health and eventual obesity." that's so true. I think we are pressed to be in good health to fight rls but somehow ppl in bad health may not have rls at all. I don't think there is too much relation in between. We do it coz it helps somehow I think

cheers

B

I wish i could stand and walk more but i have severe arthritis in lower back and knees, also fibromyalgia which especially effects my thighs and hips, i find relief when sitting down, unfortunately due to lack of exercise i have become obese, but when i try my hardest to fight the fatigue from fibro and painsomnia/rls, going for a walk/exercise bike, i end up in more pain and have to sit more, its a viscous cycle which i hate and upsets me greatly, i feel like i have no choice but to sit down😪 I used to be a great dancer, latin amercian, and play quite a bit of sports, hiking, this sedentary lifestyle kills my soul

i tried sitting exercise along to morning TV, just reaching and circling my arms slowly, i got chostochrondosis in my left rib, agony for 6 weeks.

i went to a fibro physio course, second week doing exercises my knee went and i couldn't use it for 2 weeks

something always happens to set me back when im trying to move forwards, HELP !!

i try to keep my chin up, but i really struggle through every day just barely functioning

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