Hi everyone, I have just taken the test to look at needs and it's telling me that I am the same as a high percentage of you that feel unsupported. I have decided to see my GP and have an appointment.
I have had RL for many ,many years and 9 years ago I was prescribed Ropinerale whilst living in France by a neurologist. He sent me away and I have not seen a specialist since. Over the years thus drug has served me very well with regard to my leg movement. I suffer with swollen calves, feet and ankles and one leg in particular is very tender to touch. I recently saw the nurse in my local practice who said it was the Ropinerale that was causing this problem and that I either took the tablets or not!!
I haven't had a decent nights sleep for years and last year I developed an arrhythmia which was a nightmare getting diagnosed on the NHS. I had a monitor 3 times over a period of six months. The first one didn't work, and after the second one not working either the heart doctor, whom I never met sent a letter to myself and my GP saying I was not wearing the monitor!! The 3rd one worked. I was told that no treatment was necessarily as it was a benign arrhythmia.I still have it everyday.
I am going to ask for an appointment with a neurologist who knows something about this illness to try to get some support and probably with the state of the NHS I will probably end up having to pay to see someone.
One last question; has anyone had RLS symptoms when given any medication which is oestrogen based?
This is my first post and I hope that I haven't bored anyone too much