Questions and comments

[PleeZE2]

I wonder if RLS is a topic for research and controlled studies.

Also there is a hereditary component. My Dad, sister, and my two sons suffer from it.

It worsens with age and if one is especially tired .

Any others have lymphoedema too? Ot neuropathy? I do. Connection?

[Madlegs1]

Yes on two counts!

It is a research topic- though not as extensive as we might like-- John Hopkins seems to be the most active centre.

Also it is hereditary - that's called Primary rls- it's secondary if you get it from triggers or as a reaction to medication or during withdrawal episodes.

I don't know about any Lymphoedema connection .

Cheers.

[PleeZE2 in reply to Madlegs1]

Thanks for the info. I will check out Johns Hopkins. It seems the meds are all over the place and side effects worrisome. I have a new phenomenon:

While I sit in the edge of our sofa, tensing up to minimize the symptoms, I fall asleep for mere seconds and have short dreams that seem to make sense.

Upon awakening, I sometimes make a comment related to the little dream.

Then I realize the comment makes no sense. I not sure that my eyes are closed. Am I asleep? I question if it is sleep or a waking dream. It's the med mirapex: 1 mg.

[Hidden]

Yeah +1 on Madlegs1. My symptoms have worsened over the years and do indeed be worse when tired, (when am I not?).

My father has it, its not diagnosed but its there and the jury's out on a couple of the kids, (I can only hope if it is RLS its not too bad - I'd hate to think I passed this suffering on them).

There are links with ADHD not sure on the others though. AFAIK there isn't an abundance of research as there is little money or glamour in it.

[LotteM in reply to Hidden]

AFAIK???

As far as I know?

I like your acronyms raffs! It's a game for me deciphering them by myself.

[LotteM]

I looked into and searched web of science recently for rls. Far more work is and has been done than I thought, and on many universities and med schools all over the world. Progress is slow, which is the normal way of things, unfortunately.

[Daragh]

Primary or idiopathic RLS has no known cause and usually begins slowly, before approximately 40–45 years of age. It is often genetically linked and it is likely that another family member may also share the condition. Primary RLS can come and go, sometimes for months on end, and is often progressive, meaning it gets worse with age.

Secondary RLS often has a sudden onset and is usually associated with another medical condition (e.g. iron deficiency anaemia) or the use of certain drugs. Some medications, such as the antihistamines in cold and allergy remedies, make the symptoms worse for some people (so while Benadryl tends to make most people sleepy, for example, it may actually intensify the symptoms in a person with RLS, making it harder for them to sleep.)