Hot feet at night?

[StephJH]

I'm wondering if other people get hot feet at night as part of their rls? I'm convinced mine is linked to circulation issues. If I get chilled in the evening before bedtime my feet and legs take ages to warm up and when they do they are too hot so I find myself moving them around to find a cool patch in the bed. Is this familiar to anyone?

[Madlegs1]

Yes- all the time! I would sleep with my legs out from under the bedclothes and then wake in the middle of the night absolutely frozen!

Don't know if it's connected to rls?

Cheers.

[Hidden]

There have been times my feet have been burning so much that I would walk bare foot in the snow, (briefly mind, I'm not that stupid), or sit with them in a bowl of cold water - gets the feet cooled quickly.

[StephJH in reply to Hidden]

So it's not uncommon. It's not usually mentioned in the list of symptoms. Thanks for your replies.

[Hidden in reply to StephJH]

Could also be related to a circulatory problem calledPAD (peripheral artery disease. You might want to ask your dr about testing for this. PAD diagnostic tests are easy and non-invasive and are often treated in relatively easy ways. Hope this helps.

[StephJH in reply to Hidden]

Thanks I have long suspected I have circulation problems. I have always had cold feet since childood. I'll check that out.

[Hidden in reply to StephJH]

Do you have a cardiologist ? Or any known cardiac problems? They are the ones that usually do the testing for circulatory problems. Maybe you could ask your primary care physician for a referral to a cardiologist. It's possible to have both PAD and rls. I do. It's easy to manage once diagnosed. And the symptoms and pain are much easier to deal with than rls. I wish rls was as easily taken care of. Maybe someday. Good luck getting to the cause of your 'hot and cold' symptoms. Take care. Burma (burmag)

[Joolsg]

Yes. I too sleep with my feet out of the bedclothes like Madlegs & then wake up freezing.You can't bloody win with this disease.

You are not alone. I'll bet neurologists dismiss it outright, as they do with all anecdotal evidence, even if it's overwhelming.

[StephJH in reply to Joolsg]

My legs and feet often get really cold and won't warm up, then suddenly get too hot. Anyone else get that too? If that happens I'm in for a bad night.

[Joolsg]

Yes I get that as well - but it could be my peripheral neuropathy .Also, I know I'm in for a bad night if I get sharp stabbing pains in my big toe ( as though someone is jabbing me with a metal BBQ stick).

At least we can have a good moan about it on here and realise we are not imagining it.

[StephJH in reply to Joolsg]

I don't get the big toe thing. Often I know my PLM's are coming when i get a little quiver, which can be anywhere in my body - my jaw, back, neck then I know it's about to start. Anyone else? It's a real relief to have people to compare notes with.

[Hidden in reply to Joolsg]

Hi Joolsg, Just a thought. Could your big toe/stabbing pains be gout? Maybe you could ask your primary to check some labs?

[Joolsg in reply to Hidden]

Ha ha, no- it's not gout. I have raised this question before, and quite a few people with RLS mention a similar phenomenom. I sometimes get it in the back of my knee as well. I have blood tests every 3 months as part of my MS drugs protocol and they check everything imaginable. My diet would make it very difficult for me to have gout- it's mainly plant based, no sugar, salt, caffeine, alcohol etc. But thanks for the thought.

[Hidden in reply to Joolsg]

Glad you don't have to contend with gout. That's not fun either. Take care, burmag

[martino]

I have Small Fibre Neuropathy as well as RLS. Hot feet are a feeture of SFN so very light covering at night helps.

[StephJH in reply to martino]

I have never heard of SFN. I wonder if I have that too.

[Hidden]

Yes! I also sleep with my legs out from under the bedclothes and during summer with a fan on my feet. The cold breeze prevents and suppresses my RLS. The foot or leg that suffers from bubbles really has a warmer skin than the other one.

[martino]

The neurologist that I see was puzzled about the amount of pain I was complaining about so I was sent for a nerve conduction test. SFN was then diagnosed

[StephJH in reply to martino]

And are they treating you for that? It's frustrating - I don't want to collect more diagnoses when I'm convinced it's all part if the same thing but it would be good to have the whole complex recognisef

[Hidden in reply to StephJH]

StephJH, I hear you. So many different possibilities can be frustrating and time consuming. Sometimes, though, it's easier for the doctors to focus on the real problem(s) when other possibilities are eliminated. Also, when potential diagnoses are eliminated, we don't have to waste time with "maybe it's this, maybe it's that," and can get to effective treatments more quickly, and, hopefully quicker pain relief. Also agree with hill56. I use homemade magnesium oil and it helps my legs. Magnesium can be very helpful for circulatory problems. If you want to try the magnesium oil (great absorption by this route,) click on my name for info about the recipe. Or google magnesium oil recipes. You can buy it ready-made but can be very expensive. Making your own is cheap and easy to make. burmag

[martino in reply to StephJH]

Good question. There is little treatment as such. I was already on 200mg of Tramulief, which is long lasting Tramadol, and 2700mg of Gabapentin to help with the pain. Not much else but the Neurologist increased the Neupro to 2mg.

[hill56]

I had had have this also my doctor so far has said its nerve damage after having sciatica. Red hot moving them around the cold spots in bed sometimes freezing cold have to wear thick socks to start with then take them off. I made the magnesium oil have been spraying feet, legs this has helped with the sensations.

[Tuccatoo]

Yes, I have always had hot feet. Hang them out of bed, put them in a bowl of cold water or walk on cold kitchen tiles. Sometimes I go out to walk on the grass at night as it is cold and is covered in dew! Funny thing is though, that if you feel them they do not feel hot at all.

[Haleygirl in reply to Tuccatoo]

Same! Since I was a kid

[StephJH]

I have never seen this mentioned on the official medical websites yet it is clearly not uncommon and I am convinced it is linked to my RLS. My gp wasn't interested and suggested it was maybe a form of Raynaud's syndrome.

[taniabacon]

I use a 'cool mat' I bought for my dogs to lie on in hot weather! I put it on a pillow so my feet are slightly elevated and it offers some relief from the overheating and 'sunburnt' sensation. X

[StephJH in reply to taniabacon]

Thanks good idea.

[Ramse883]

My biggest complaint is hot feet. Have had this for decades but seems to have worsened since menopause. Rarely do I not have hot feet at night. I generally put a cold pack in a pillow case. Drives me crazy.

[Selcarim]

I have had the same burning feet snydrome for years. My mother who was an RN is a firm believer the cause is from continued frost bite as a child. I would ice skate, sleigh ride and ice fish even snow ski until my feet couldnt take another second outdoors. Once inside, I would cry and beg for a sibling or parental help to remove my iced down weighted pants boots and or socks. Does anyone know if long term studys have been done on frostbite that would proove or disproove her theory? My mom has long passed but I truly think she was right.

[Karl55]

My feet are always hot. Since I was a young kid I've had RLS although never knew it was a real thing. Thought it was just me. Ha!

I've would always kick the covers off and I do not like anyone touching my feet. My wife loves foot massages and can't understand why I don't like my feet touched.

[tony1962]

I am sitting here 5am been awake since two because I cant stop rubbing my feet together and I am constantly trying to find a cold spot, I have even walked around the wet garden bare footed to try and cool them it a nightmare, I sometimes get it in the arms and legs it horrid, been told it could be an iron deficiency, been told to ask doctor for cabergoline or bromocriptine, also been suggested to drink ovaltine or hot milk before bed. if any of these work I shall let everyone know and would appreciate any advice, good luck to all

[TwitchyFeet50]

My feet drive me crazy most nights between heat and rls. I spend a lot of night getting up in the middle of the night to soak my feet in cold water, which helps a lot, but temporarily. Wish I could find a super cooling lotion- anyone have a lead? Something minty and penetrating?